Cnossen Ingrid C, van Uden-Kraan Cornelia F, Eerenstein Simone E J, Jansen Femke, Witte Birgit I, Lacko Martin, Hardillo José A, Honings Jimmie, Halmos Gyorgy B, Goedhart-Schwandt Noortje L Q, de Bree Remco, Leemans C René, Verdonck-de Leeuw Irma M
Department of Otolaryngology-Head and Neck Surgery, VU University Medical Center (VUmc), PO Box 7057, 1007, MB, Amsterdam, The Netherlands.
Department of Clinical Psychology, VU University, Van der Boechorststraat 1, 1081, BT, Amsterdam, The Netherlands.
Support Care Cancer. 2016 Mar;24(3):1261-8. doi: 10.1007/s00520-015-2896-1. Epub 2015 Aug 26.
The purpose of this study was to investigate the feasibility of an online self-care education program supporting early rehabilitation of patients after total laryngectomy (TLPs) and factors associated with satisfaction.
Health care professionals (HCPs) were invited to participate and to recruit TLPs. TLPs were informed on the self-care education program "In Tune without Cords" (ITwC) after which they gained access. A study specific survey was used (at baseline T0 and postintervention T1) on TLPs' uptake. Usage, satisfaction (general impression, willingness to use, user-friendliness, satisfaction with self-care advice and strategies, Net Promoter Score (NPS)), sociodemographic, and clinical factors were analyzed.
HCPs of 6 out of 9 centers (67% uptake rate) agreed to participate and recruited TLPs. In total, 55 of 75 TLPs returned informed consent and the baseline T0 survey and were provided access to ITwC (73% uptake rate). Thirty-eight of these 55 TLPs used ITwC and completed the T1 survey (69% usage rate). Most (66%) TLPs were satisfied (i.e., score ≥7 (scale 1-10) on 4 survey items) with the self-care education program (mean score 7.2, SD 1.1). NPS was positive (+5). Satisfaction with the self-care education program was significantly associated with (higher) educational level and health literacy skills (P = .004, P = .038, respectively). No significant association was found with gender, age, marital status, employment status, Internet use, Internet literacy, treatment modality, time since total laryngectomy, and quality of life.
The online self-care education program ITwC supporting early rehabilitation was feasible in clinical practice. In general, TLPs were satisfied with the program.
本研究旨在探讨一项支持全喉切除术后患者早期康复的在线自我护理教育项目的可行性以及与满意度相关的因素。
邀请医疗保健专业人员（HCPs）参与并招募全喉切除术后患者（TLPs）。向TLPs介绍自我护理教育项目“无声合拍”（ITwC），之后他们获得了访问权限。使用一项针对该研究的调查问卷（在基线T0和干预后T1）来了解TLPs的参与情况。对使用情况、满意度（总体印象、使用意愿、用户友好性、对自我护理建议和策略的满意度、净推荐值（NPS））、社会人口统计学和临床因素进行了分析。
9个中心中有6个中心的HCPs（参与率67%）同意参与并招募了TLPs。总共有75名TLPs中的55名返回了知情同意书并完成了基线T0调查，随后获得了ITwC的访问权限（参与率73%）。这55名TLPs中有38名使用了ITwC并完成了T1调查（使用率69%）。大多数（66%）TLPs对自我护理教育项目感到满意（即在4个调查项目上得分≥7（1 - 10分制））（平均得分7.2，标准差1.1）。NPS为正值（+5）。对自我护理教育项目的满意度与（较高的）教育水平和健康素养技能显著相关（分别为P = 0.004，P = 0.038）。未发现与性别、年龄、婚姻状况、就业状况、互联网使用情况、互联网素养、治疗方式、全喉切除术后时间以及生活质量存在显著关联。
支持早期康复的在线自我护理教育项目ITwC在临床实践中是可行的。总体而言，TLPs对该项目感到满意。
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