为囊性纤维化患者开发一种手持记录设备。
Developing a handheld record for patients with cystic fibrosis.
作者信息
Narayan Omendra, Davies Siobhan, Tibbins Carly, Rees Jh Martyn, Lenney Warren, Gilchrist Francis J
机构信息
Academic Department of Child Health, Royal Stoke University Hospital, Stoke-on-Trent, UK.
West Midlands Medicines for Children Research Network, Royal Stoke University Hospital, Stoke-on-Trent, UK.
出版信息
Patient Relat Outcome Meas. 2015 Aug 13;6:225-8. doi: 10.2147/PROM.S86298. eCollection 2015.
Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online.
患者手持记录（PHHRs）有助于自我管理，并使持有者能够在疾病管理中发挥更积极的作用。它们已成功用于改善儿童的预防保健，并有助于提高多种慢性病的依从性。尽管有潜在的优势，但囊性纤维化（CF）患者尚无标准的PHHRs。我们报告了导致CF PHHRs开发的咨询过程，描述了最终文件，并分析了在我们中心使用后的反馈。我们已将CF PHHRs免费在线提供。
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