Wiener Lori, Viola Adrienne, Kearney Julia, Mullins Larry L, Sherman-Bien Sandra, Zadeh Sima, Farkas-Patenaude Andrea, Pao Maryland
Pediatric Oncology Branch, National Cancer Institute, Bethesda, MD, USA
Pediatric Oncology Branch, National Cancer Institute, Bethesda, MD, USA Rutgers Robert Wood Johnson Medical School, Newark, NJ, USA.
J Pediatr Oncol Nurs. 2016 Sep;33(5):378-86. doi: 10.1177/1043454215616610. Epub 2015 Dec 14.
Caregiving stress has been associated with changes in the psychological and physical health of parents of children with cancer, including both partnered and single parents. While parents who indicate "single" on a demographic checklist are typically designated as single parents, a parent can be legally single and still have considerable support caring for an ill child. Correspondingly, an individual can be married/partnered and feel alone when caring for a child with serious illness. In the current study, we report the results from our exploratory analyses of parent self-reports of behavior changes during their child's treatment. Parents (N = 263) of children diagnosed with cancer were enrolled at 10 cancer centers. Parents reported significant worsening of all their own health behaviors surveyed, including poorer diet and nutrition, decreased physical activity, and less time spent engaged in enjoyable activities 6 to 18 months following their child's diagnosis. More partnered parents found support from friends increased or stayed the same since their child's diagnosis, whereas a higher proportion of lone parents reported relationships with friends getting worse. More lone parents reported that the quality of their relationship with the ill child's siblings had gotten worse since their child's diagnosis. Spiritual faith increased for all parents.
照顾压力与患癌儿童父母的心理和身体健康变化有关,包括已婚和单身父母。虽然在人口统计清单上勾选“单身”的父母通常被认定为单亲,但法律上单身的父母在照顾患病孩子时仍可能获得相当多的支持。相应地,一个人可能已婚/有伴侣,但在照顾重病孩子时仍会感到孤独。在本研究中,我们报告了对父母关于孩子治疗期间行为变化的自我报告进行探索性分析的结果。10个癌症中心招募了被诊断患有癌症的儿童的父母(N = 263)。父母报告称,在孩子确诊后的6至18个月里,他们所调查的所有自身健康行为都显著恶化,包括饮食和营养变差、身体活动减少以及从事愉快活动的时间减少。更多有伴侣的父母发现自孩子确诊以来从朋友那里获得的支持增加或保持不变,而更高比例的单亲父母报告称与朋友的关系变差。更多单亲父母报告说,自孩子确诊以来,他们与患病孩子兄弟姐妹的关系质量变差。所有父母的精神信仰都增强了。