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本文引用的文献

1
What parents say about their child's surgeon: parent-reported experiences with pediatric surgical physicians.家长对孩子的外科医生的评价:家长报告的小儿外科医生的经验。
JAMA Otolaryngol Head Neck Surg. 2014 May;140(5):397-402. doi: 10.1001/jamaoto.2014.102.
2
Identifying barriers and improving communication between cancer service providers and Aboriginal patients and their families: the perspective of service providers.确定癌症服务提供者与原住民患者及其家属之间的沟通障碍并加以改善:服务提供者的观点。
BMC Health Serv Res. 2013 Nov 4;13:460. doi: 10.1186/1472-6963-13-460.
3
Therapist, Parent, and Youth Perspectives of Treatment Barriers to Family-Focused Community Outpatient Mental Health Services.治疗师、家长和青少年对以家庭为中心的社区门诊心理健康服务治疗障碍的看法。
J Child Fam Stud. 2013 Aug 1;22(6):854-868. doi: 10.1007/s10826-012-9644-7.
4
Assessing quality improvement in health care: theory for practice.评估医疗保健质量改进:理论与实践。
Pediatrics. 2013 Mar;131 Suppl 1:S110-9. doi: 10.1542/peds.2012-1427n.
5
Therapist Focus on Parent Involvement in Community-Based Youth Psychotherapy.治疗师关注家长在社区青少年心理治疗中的参与情况。
J Child Fam Stud. 2012;21(4):646-656. doi: 10.1007/s10826-011-9517-5. Epub 2011 Aug 30.
6
Patient- and family-centered care and the pediatrician's role.以患者和家庭为中心的护理和儿科医生的角色。
Pediatrics. 2012 Feb;129(2):394-404. doi: 10.1542/peds.2011-3084. Epub 2012 Jan 30.
7
Measuring patient and family experiences of health care for children.测量儿童医疗保健中患者及其家属的体验。
Acad Pediatr. 2011 May-Jun;11(3 Suppl):S59-67. doi: 10.1016/j.acap.2011.01.009.
8
Assessment of health care by children and adolescents depends on when they respond to the questionnaire.儿童和青少年对医疗保健的评估取决于他们对问卷的回应时间。
Int J Qual Health Care. 2010 Aug;22(4):259-65. doi: 10.1093/intqhc/mzq021. Epub 2010 Apr 28.
9
How do children experience participating in a coeliac disease screening? A qualitative study based on children's written narratives.儿童参与乳糜泻筛查的体验如何?基于儿童书面叙述的定性研究。
Scand J Public Health. 2010 Jun;38(4):351-8. doi: 10.1177/1403494810368454. Epub 2010 Apr 22.
10
Patients' perceptions of GP non-verbal communication: a qualitative study.患者对全科医生非言语沟通的感知:一项定性研究。
Br J Gen Pract. 2010 Feb;60(571):83-7. doi: 10.3399/bjgp10X483111.

患有慢性病的儿童及其父母对儿科医生有何看法?一项定性访谈研究。

What Do Children with Chronic Diseases and Their Parents Think About Pediatricians? A Qualitative Interview Study.

作者信息

Konstantynowicz Jerzy, Marcinowicz Ludmiła, Abramowicz Paweł, Abramowicz Magdalena

机构信息

Department of Pediatrics and Developmental Disorders, Ludwik Zamenhof Children's Hospital, Medical University of Bialystok, Waszyngtona Street 17, 15-274, Białystok, Poland.

Department of Family Medicine and Community Nursing, Medical University of Bialystok, Białystok, Poland.

出版信息

Matern Child Health J. 2016 Aug;20(8):1745-52. doi: 10.1007/s10995-016-1978-0.

DOI:10.1007/s10995-016-1978-0
PMID:27008175
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4935739/
Abstract

Objectives The aim of this study was to determine how pediatric patients and their parents perceive health care during hospital stays, what are their expectations of doctor behaviors, and which components of care do they consider to be the most important. Methods A qualitative descriptive study was carried out using the open interview technique. Twenty-six parents and 22 children undergoing hospital treatment participated. Results Our analysis identified two major themes: (1) doctor verbal and non-verbal behaviors, which included informing and explaining, conversations on topics other than the illness, tone of voice and other behaviors; and (2) perceived strategies used by doctors. This category included claims of doctors' intentional use of medical jargon to avoid addressing parental questions directly. Parents admitted that they did not understand medical vocabulary, but they also thought they might understand more of the medical issues if the doctor spoke using terms comprehensible to them. Conlcusions Our study shows the importance of interpersonal relationship affecting patient perception of quality of pediatric care. Parents of pediatric patients perceive that doctors behave in ways that deflect parents' questions and avoid providing them with medical information. Such behaviors include doctors excusing themselves by saying they are busy and using medical jargon. Medical students and doctors should be trained to communicate effectively with patients and their parents and develop skills to convey information in a simple and comprehensible way.

摘要

目的 本研究旨在确定儿科患者及其父母在住院期间如何看待医疗保健,他们对医生行为有哪些期望,以及他们认为护理的哪些组成部分最重要。方法 采用开放式访谈技术进行定性描述性研究。26名接受住院治疗的患儿父母和22名患儿参与了研究。结果 我们的分析确定了两个主要主题:(1)医生的言语和非言语行为,包括告知和解释、关于疾病以外话题的交谈、语气和其他行为;(2)医生使用的感知策略。这一类别包括医生故意使用医学术语以避免直接回答家长问题的说法。家长承认他们不理解医学词汇,但他们也认为如果医生用他们能理解的术语说话,他们可能会更多地理解医学问题。结论 我们的研究表明人际关系对儿科护理质量患者认知的重要性。儿科患者的父母认为医生的行为方式会转移父母的问题并避免向他们提供医疗信息。这些行为包括医生以忙碌为由推脱以及使用医学术语。医学生和医生应接受培训,以便与患者及其父母进行有效沟通,并培养以简单易懂的方式传达信息的技能。