Mayberry Lindsay Satterwhite, Harper Kryseana J, Osborn Chandra Y
Department of Medicine, Vanderbilt University Medical Center, Nashville, TN, USA Center for Health Behavior and Health Education, Vanderbilt University Medical Center, Nashville, TN, USA Center for Diabetes Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA
Department of Medicine, Vanderbilt University Medical Center, Nashville, TN, USA Center for Health Behavior and Health Education, Vanderbilt University Medical Center, Nashville, TN, USA.
Chronic Illn. 2016 Sep;12(3):199-215. doi: 10.1177/1742395316644303. Epub 2016 Apr 19.
Diabetes-specific family behaviors are associated with self-care and glycemic control among adults with type 2 diabetes. Formative research is needed to inform assessment of these behaviors and interventions to address obstructive family behaviors (sabotaging and nagging/arguing), particularly among racial/ethnic minorities and low-income adults who struggle most with self-care adherence.
We conducted a mixed-methods study with adults with type 2 diabetes at a Federally Qualified Health Center to better understand experiences with diabetes-specific family behaviors and willingness to engage family members in diabetes interventions. Participants completed a phone survey (N = 53) and/or attended a focus group (n = 15).
Participants were 70% African American and had low socioeconomic status (96% annual income <US$20K, 51% uninsured). Although 62% lived with family members, only 48% lived with the person providing the most diabetes-specific support. Participants' family living situations were diverse and multigenerational. Most (64%) experienced both supportive and obstructive family behaviors from the same person(s). Some participants (40%) said engaging family in interventions would positively affect all members; others (27%) did not want to involve family.
Findings can inform the design and content of interventions targeting family involvement in adults' type 2 diabetes, with implications for assessing family behaviors, intervention modalities, and who to engage.
特定于糖尿病的家庭行为与2型糖尿病成年人的自我护理及血糖控制相关。需要开展形成性研究,以指导对这些行为的评估以及针对阻碍性家庭行为(破坏和唠叨/争吵)的干预措施,尤其是在自我护理依从性方面最困难的少数族裔和低收入成年人中。
我们在一家联邦合格健康中心对2型糖尿病成年人进行了一项混合方法研究,以更好地了解特定于糖尿病的家庭行为经历以及让家庭成员参与糖尿病干预的意愿。参与者完成了一项电话调查(N = 53)和/或参加了一个焦点小组(n = 15)。
参与者中有70%是非裔美国人,社会经济地位较低(96%的年收入低于2万美元,51%没有保险)。尽管62%的人与家庭成员同住,但只有48%的人与提供最多糖尿病特定支持的人同住。参与者的家庭生活状况多样且跨代。大多数(64%)从同一个人那里既经历了支持性的家庭行为,也经历了阻碍性的家庭行为。一些参与者(40%)表示让家人参与干预会对所有成员产生积极影响;另一些人(27%)不想让家人参与。
研究结果可为针对家庭参与成年人2型糖尿病的干预措施的设计和内容提供参考,对评估家庭行为、干预方式以及参与对象具有启示意义。