“总是艾滋病和结核病”：南非开普敦居家护理人员对癫痫的看法
"It is always HIV/AIDS and TB": Home-based carers' perspectives on epilepsy in Cape Town, South Africa.
作者信息
Keikelame Mpoe Johannah, Swartz Leslie
机构信息
Primary Health Care Directorate, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
Department of Psychology, Stellenbosch University, Stellenbosch, South Africa;
出版信息
Int J Qual Stud Health Well-being. 2016 Jun 1;11:30213. doi: 10.3402/qhw.v11.30213. eCollection 2016.
Abstract
The study highlights the complex cultural religious factors affecting epilepsy and a need for integrated home-based care services. Two focus group discussions exploring home-based carers' (HBCs) perspectives on epilepsy were conducted using a semi-structured focus group interview guide, which was based on Kleinman's explanatory model framework. The audio-recorded data were transcribed verbatim, and a thematic analysis was done. The three main themes were epilepsy names and metaphors, religious beliefs about the cause and treatment of epilepsy, and HBCs' perceived roles and strategies for engaging in epilepsy care. Findings provide some insights for research, policy, and practice.
摘要
该研究强调了影响癫痫的复杂文化宗教因素以及对综合家庭护理服务的需求。使用基于克莱曼解释模型框架的半结构化焦点小组访谈指南，进行了两次焦点小组讨论，以探讨家庭护理人员（HBCs）对癫痫的看法。对录音数据进行逐字转录，并进行了主题分析。三个主要主题是癫痫的名称和隐喻、关于癫痫病因和治疗的宗教信仰，以及HBCs对参与癫痫护理的感知角色和策略。研究结果为研究、政策和实践提供了一些见解。
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