Arpacı Abdullah, Aytaç Necdet, Yüregir Güneş T, Tuli Abdullah, Aksoy Kıymet
Turk J Haematol. 2003 Mar 5;20(1):19-24.
ß-thalassemia and sickle cell anemia (SCA) are major health problems in Çukurova. Screening studies have been carried on in this region for many years. The government started premarital screening programme and prenatal diagnosis has been done in Çukurova University Medical Faculty since 1992. In spite of all these, the prevention programme has not been successful. The purpose of this study was to start an education programme to increase the awareness of the people for these severe hereditary diseases. The target population was the 8th grade students. A visual presentation was given to students on Thalassemia and SCA after examining the curriculum in the Biology and/or the Science books. A total of 1221 students in seven Elementary Schools were informed. A questionnaire was given to five schools before the presentation and to two after the presentation. The comparison of the two group's result showed that the information given was well received. Thus, an extensive education programme encompassing doctors, health personel, civil and religious leaders and the support of the government will result in nil SCA and Thalassemia births.
β地中海贫血和镰状细胞贫血(SCA)是屈库洛瓦地区的主要健康问题。多年来该地区一直在开展筛查研究。政府自1992年起启动了婚前筛查项目,屈库洛瓦大学医学院也开展了产前诊断。尽管如此,预防项目仍未取得成功。本研究的目的是启动一项教育项目,以提高人们对这些严重遗传性疾病的认识。目标人群是八年级学生。在查阅生物和/或科学教材的课程内容后,向学生进行了关于地中海贫血和SCA的视觉展示。共有七所小学的1221名学生得到了相关信息。在展示前向五所学校发放了问卷,展示后向两所学校发放了问卷。两组结果的比较表明所提供的信息受到了好评。因此,一项涵盖医生、卫生人员、民间和宗教领袖并得到政府支持的广泛教育项目将使SCA和地中海贫血的出生数为零。