Southby Kris
Leeds Beckett University, UK.
J Intellect Disabil. 2017 Dec;21(4):366-386. doi: 10.1177/1744629516658577. Epub 2016 Jul 20.
Respite aims to alleviate the stress and burden of caring for someone with an intellectual disability and/or autism. Respite can take place in a number of different ways, but most commonly occurs in a residential setting. Based on survey and interview data with carers (CAs), service users and stakeholders (STs) in a northern city in England, this article explores some of the perceived or actual barriers to availing 'non-residential' respite. A number of barriers to non-residential respite are identified. Residential respite appears to be the default conceptualization of 'respite' for carers, service users and stakeholders. Persuading carers, service users and stakeholders to give up the familiarity and safety of residential respite in favour of a non-residential alternative will be challenging unless those involved are more informed. Limitations and directions for future research are suggested.
喘息服务旨在减轻照顾智障人士和/或自闭症患者的压力与负担。喘息服务可以通过多种不同方式提供,但最常见的是在住宿环境中进行。基于对英格兰北部一个城市的照顾者(CAs)、服务使用者和利益相关者(STs)的调查与访谈数据,本文探讨了在获得“非住宿式”喘息服务方面一些被感知到的或实际存在的障碍。确定了非住宿式喘息服务存在的一些障碍。对于照顾者、服务使用者和利益相关者而言,住宿式喘息服务似乎是“喘息服务”的默认概念。除非相关人员能了解更多信息,否则要说服照顾者、服务使用者和利益相关者放弃住宿式喘息服务的熟悉感和安全感,转而选择非住宿式替代方案将具有挑战性。文中还提出了研究的局限性及未来研究方向。