Thieleman Kara J, Wallace Cara, Cimino Andrea N, Rueda Heidi A
a Arizona State University School of Social Work , Phoenix , Arizona , USA.
b Saint Louis University School of Social Work , St. Louis , Missouri , USA.
J Soc Work End Life Palliat Care. 2016 Jul-Sep;12(3):289-306. doi: 10.1080/15524256.2016.1200518.
The death of a child may have a profound impact on parents, family members, and health care providers who provided care for the child. Unique challenges are faced by parents of seriously ill children as they must serve as the legal authority for health care decisions of children under age 18, although the child's wishes must also be considered. Social workers must balance core social work values, bioethical values, and psychosocial issues presented by such situations. While studies have been conducted with physicians and nurses regarding ethical issues in pediatric end-of-life care settings, little is known about how social workers experience these conflicts. This article utilizes two vignettes to illustrate potential ethical issues in this setting and applies the National Association of Social Workers Standards for Palliative and End of Life Care (NASW, 2004 ) to explore options for their resolution. These vignettes provide descriptions of possible reactions in this setting and can be used as a basis for further exploration of ethics in pediatric end-of-life care from a social work perspective.
儿童的死亡可能会对其父母、家庭成员以及为该儿童提供护理的医护人员产生深远影响。身患重病儿童的父母面临着独特的挑战,因为他们必须充当18岁以下儿童医疗决策的法定权威,不过儿童的意愿也必须予以考虑。社会工作者必须在核心社会工作价值观、生物伦理价值观以及此类情况所呈现的心理社会问题之间找到平衡。虽然已经针对医生和护士在儿科临终护理环境中的伦理问题开展了研究,但对于社会工作者如何经历这些冲突却知之甚少。本文运用两个案例来阐述这种情况下潜在的伦理问题,并应用美国社会工作者协会姑息治疗与临终关怀标准(美国社会工作者协会,2004年)来探索解决这些问题的办法。这些案例描述了这种情况下可能的反应,可作为从社会工作角度进一步探讨儿科临终护理伦理问题的基础。