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化脓性汗腺炎患者的性功能和生活质量受损:一项多中心横断面研究。

Sexual health and quality of life are impaired in hidradenitis suppurativa: a multicentre cross-sectional study.

机构信息

Department of Dermatology, University of Groningen, University Medical Centre Groningen, Groningen, the Netherlands.

Department of Dermatology, Erasmus University Medical Centre, Rotterdam, the Netherlands.

出版信息

Br J Dermatol. 2017 Apr;176(4):1042-1047. doi: 10.1111/bjd.14975. Epub 2017 Feb 24.

Abstract

BACKGROUND

Hidradenitis suppurativa (HS) has a major impact on patients' quality of life (QoL). Although it has commonly been assumed that HS impairs sexual health, only a single case-control study has been performed on sexual functioning in a small group of patients with HS.

OBJECTIVES

To investigate the QoL with a particular focus on sexual health in a substantial population of patients with HS.

METHODS

In total 916 patients with HS received an invitation to participate in this multicentre cross-sectional survey.

RESULTS

Three hundred patients completed the questionnaires. This study showed a diminished QoL and sexual health in patients with HS (Female Sexual Function Index: 21·6 ± 9·6, International Index of Erectile Function: 49·7 ± 20·7, Arizona Sexual Experience Scale: 16·7 ± 5·3, Dermatology Life Quality Index: 12·5 ± 7·5). Sexual health was associated with QoL in women but not in men. Female sex and late onset of HS were associated with poor sexual function. Impairment of QoL was associated with anogenital involvement, early onset of HS, disease severity and disease activity.

CONCLUSIONS

HS is associated with impaired sexual health and QoL. Physicians should not hesitate to ask patients with HS about their sexual function and, when needed, offer them psychological support.

摘要

背景

化脓性汗腺炎(HS)对患者的生活质量(QoL)有重大影响。尽管人们普遍认为 HS 会损害性健康,但仅有一项针对少数 HS 患者的性功能的单病例对照研究。

目的

调查大量 HS 患者的 QoL,特别关注性健康。

方法

共有 916 名 HS 患者收到参与这项多中心横断面调查的邀请。

结果

300 名患者完成了问卷。这项研究表明 HS 患者的 QoL 和性健康下降(女性性功能指数:21.6±9.6;国际勃起功能指数:49.7±20.7;亚利桑那性体验量表:16.7±5.3;皮肤病生活质量指数:12.5±7.5)。性健康与女性的 QoL 相关,但与男性无关。女性性别和 HS 的晚期发病与较差的性功能相关。QoL 的受损与生殖器受累、HS 的早期发病、疾病严重程度和疾病活动度相关。

结论

HS 与性健康和 QoL 的受损相关。医生不应犹豫询问 HS 患者的性功能问题,必要时为他们提供心理支持。

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