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用于增强痛风自我管理的移动应用程序。

Mobile applications to enhance self-management of gout.

作者信息

Nguyen Amy D, Baysari Melissa T, Kannangara Diluk R W, Tariq Amina, Lau Annie Y S, Westbrook Johanna I, Day Richard O

机构信息

Department of Clinical Pharmacology & Toxicology, St. Vincent's Hospital, Sydney, Australia; St. Vincent's Clinical School, St. Vincent's Hospital, University of New South Wales, Sydney, Australia.

Department of Clinical Pharmacology & Toxicology, St. Vincent's Hospital, Sydney, Australia; Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, Australia.

出版信息

Int J Med Inform. 2016 Oct;94:67-74. doi: 10.1016/j.ijmedinf.2016.06.021. Epub 2016 Jun 30.

Abstract

BACKGROUND

Gout is an arthritic condition that is characterised by extremely painful, debilitating acute attacks and eventual joint and organ damage if not controlled. Despite the availability of very effective therapies that, if adhered to, will prevent acute attacks and long-term damage, the disorder is increasingly prevalent. There is an urgent need to improve self-management of gout.

OBJECTIVES

Mobile health (mHealth) applications ('apps'), designed to facilitate management of chronic conditions, present novel opportunities for supporting patient self-management of gout. The aim of this review was to assess features of available gout management apps designed to assist consumers in managing their gout and their consistency with guidelines for gout management.

METHODS

English-language, smart-device apps designed to assist self-management of gout were identified using search term "gout" and downloaded from Apple and Google Play app stores. To be included in the review, apps had to allow users to monitor their gout disease (e.g. serum uric acid (sUA) tracking, record acute attacks) and/or educate patients about gout. Investigators derived patient-focused recommendations for gout management from contemporary guidelines. Features of reviewed apps were independently assessed by two reviewers for their facilitation of these recommendations.

RESULTS

The search identified 57 apps possibly relevant to gout management, of which six met the inclusion criteria. One app incorporated all recommendations for patient-focused gout management from guidelines including monitoring sUA, recording attacks and lifestyle advice. However, the majority of these elements were not functional within the app, and instead required users to manually complete printouts.

CONCLUSIONS

Currently, only one app exists that includes all recommendations to facilitate patient self-management of gout, however some features can only be actioned manually. Given the lack of progress in achieving better patient outcomes and the promise of mHealth interventions to deliver significant gains, new or updated gout management apps are required to promote successful self-management of this chronic disease.

摘要

背景

痛风是一种关节炎疾病,其特征是急性发作时疼痛剧烈、使人衰弱,若不加以控制,最终会导致关节和器官损伤。尽管有非常有效的治疗方法,坚持使用这些方法可以预防急性发作和长期损伤,但这种疾病却越来越普遍。迫切需要改善痛风的自我管理。

目的

旨在促进慢性病管理的移动健康(mHealth)应用程序(“应用”)为支持痛风患者的自我管理提供了新的机会。本综述的目的是评估现有痛风管理应用的功能特性,这些应用旨在帮助消费者管理痛风,并评估其与痛风管理指南的一致性。

方法

使用搜索词“gout”识别旨在帮助痛风自我管理的英文智能设备应用,并从苹果应用商店和谷歌应用商店下载。要纳入本综述,应用必须允许用户监测其痛风病情(例如血清尿酸(sUA)跟踪、记录急性发作)和/或对患者进行痛风教育。研究人员从当代指南中得出以患者为中心的痛风管理建议。两名评审员独立评估所审查应用的功能特性对这些建议的促进作用。

结果

搜索确定了57个可能与痛风管理相关的应用,其中6个符合纳入标准。有一个应用纳入了指南中所有以患者为中心的痛风管理建议,包括监测sUA、记录发作情况和生活方式建议。然而,这些要素中的大多数在应用内无法正常使用,而是需要用户手动填写打印件。

结论

目前,只有一个应用包含了促进痛风患者自我管理的所有建议,但有些功能只能手动操作。鉴于在改善患者治疗效果方面缺乏进展,以及移动健康干预有望带来显著收益,需要新的或更新的痛风管理应用来促进这种慢性病的成功自我管理。

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