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教育为智障儿童营造了舒适的环境,并向对他们的污名化发起挑战。

Education creates comfort and challenges stigma towards children with intellectual disabilities.

作者信息

Breau Lynn M, Aston Megan, MacLeod Emily

机构信息

Glenrose Rehabilitation Hospital, Canada.

Dalhousie University, Canada.

出版信息

J Intellect Disabil. 2018 Mar;22(1):18-32. doi: 10.1177/1744629516667892. Epub 2017 Feb 7.

Abstract

Children with intellectual disabilities (IDs) are frequent users of the healthcare system, yet nurses report they receive little education regarding specialized medical, social and relational needs of this population. Therefore, parents take on a greater burden of care while their child is in hospital than do parents of typically developing children. This article reports findings from a qualitative study that used feminist poststructuralism to examine the hospital experiences of eight children with IDs, 17 mothers and 12 nurses. Nurses and mothers reported a lack of knowledge and education regarding the healthcare of children with ID and identified a need for more education. Participants noted that physical care of children with ID was prioritized as more important than communication and relationships. This unintentional prioritization was socially and institutionally constructed through stigma and stereotypes about people with IDs. Nurses and parents offered suggestions to access and increase ID education for healthcare professionals.

摘要

智障儿童是医疗保健系统的频繁使用者,但护士报告称,他们很少接受关于这一人群特殊医疗、社会和关系需求的教育。因此,与发育正常儿童的父母相比,智障儿童住院期间其父母承担着更重的护理负担。本文报告了一项定性研究的结果,该研究运用女性主义后结构主义方法,对8名智障儿童、17名母亲和12名护士的住院经历进行了考察。护士和母亲们表示,他们缺乏关于智障儿童医疗保健的知识和教育,并指出需要更多教育。参与者指出,智障儿童的身体护理被认为比沟通和关系更重要。这种无意的优先级划分是通过对智障人士的污名化和刻板印象在社会和制度层面构建起来的。护士和家长就如何让医疗保健专业人员获得并增加智障教育提出了建议。

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