Johnsen Søren Paaske, Ingeman Annette, Hundborg Heidi Holmager, Schaarup Susanne Zielke, Gyllenborg Jesper
Department of Clinical Epidemiology, Aarhus University Hospital.
Department of Clinical Epidemiology, Aarhus University Hospital; Registry Support Center of Clinical Quality & Health Informatics (West), The Danish Clinical Registries, Aarhus.
Clin Epidemiol. 2016 Oct 25;8:697-702. doi: 10.2147/CLEP.S103662. eCollection 2016.
The aim of the Danish Stroke Registry is to monitor and improve the quality of care among all patients with acute stroke and transient ischemic attack (TIA) treated at Danish hospitals.
All patients with acute stroke (from 2003) or TIA (from 2013) treated at Danish hospitals. Reporting is mandatory by law for all hospital departments treating these patients. The registry included >130,000 events by the end of 2014, including 10,822 strokes and 4,227 TIAs registered in 2014.
The registry holds prospectively collected data on key processes of care, mainly covering the early phase after stroke, including data on time of delivery of the processes and the eligibility of the individual patients for each process. The data are used for assessing 18 process indicators reflecting recommendations in the national clinical guidelines for patients with acute stroke and TIA. Patient outcomes are currently monitored using 30-day mortality, unplanned readmission, and for patients receiving revascularization therapy, also functional level at 3 months poststroke.
Sociodemographic, clinical, and lifestyle factors with potential prognostic impact are registered.
The Danish Stroke Registry is a well-established clinical registry which plays a key role for monitoring and improving stroke and TIA care in Denmark. In addition, the registry is increasingly used for research.
丹麦卒中登记处的目的是监测并改善丹麦医院治疗的所有急性卒中和短暂性脑缺血发作(TIA)患者的护理质量。
丹麦医院治疗的所有急性卒中患者(自2003年起)或TIA患者(自2013年起)。法律规定,所有治疗这些患者的医院科室均须上报。截至2014年底,该登记处记录了超过130,000例事件,包括2014年登记的10,822例卒中和4,227例TIA。
该登记处前瞻性收集了关键护理流程的数据,主要涵盖卒中后的早期阶段,包括各流程的实施时间以及每位患者对各流程的适用性数据。这些数据用于评估18项流程指标,这些指标反映了国家急性卒中和TIA患者临床指南中的建议。目前使用30天死亡率、非计划再入院率来监测患者预后,对于接受血管再通治疗的患者,还监测卒中后3个月的功能水平。
记录了具有潜在预后影响的社会人口统计学、临床和生活方式因素。
丹麦卒中登记处是一个成熟的临床登记处,在监测和改善丹麦的卒中和TIA护理方面发挥着关键作用。此外,该登记处越来越多地用于研究。