乌干达国家转诊医院中被诊断患有严重精神疾病患者的照料者的生活质量
Quality of life of caregivers of patients diagnosed with severe mental illness at the national referral hospitals in Uganda.
作者信息
Ndikuno Cynthia, Namutebi Mariam, Kuteesa Job, Mukunya David, Olwit Connie
机构信息
Department of Nursing, College of Health Sciences, Makerere University, Kampala, Uganda.
Department of Nursing, College of Health Sciences, Makarere University, Mulago Hill road, P.O BOX 7072, Kampala, Uganda.
出版信息
BMC Psychiatry. 2016 Nov 15;16(1):400. doi: 10.1186/s12888-016-1084-2.
BACKGROUND
Worldwide, 450 million people suffer from mental and behavioral disorders. In Uganda, it is estimated that 35% of the population that is 9,574,915 people suffer from some form of mental illness. Caregivers are increasingly bearing the responsibility of taking care of these patients, which can influence their QoL due to the social and economic costs they incur. The aim of the study was to assess the QoL of caregivers for patients diagnosed with severe mental illness attending the National Referral Hospitals in Uganda.
METHOD
This was a cross sectional study. A pretested tool with two parts; a sociodemographic part and a validated WHOQOL-BREF, was used to collect data from 300 consecutive eligible participants. SPSS (Statistical Package for Social Sciences) Version 22 and Stata Version 14 were used in data entry and analysis.
RESULTS
Of the 300 participants, 57.3% of the caregivers had a poor QoL. The statistically significant factors associated with QoL were environment (Adjusted coefficient = 0.016, 95% CI = 0.009-0.023), caregiver satisfaction with their health (Adjusted coefficient = 0.405, 95% CI = 0.33-0.487), psychological wellbeing (Adjusted coefficient = 0.007, 95% CI = 0.0002-0.013), and education level (Adjusted coefficient = 0.148, 95% CI = 0.072-0.225).
CONCLUSION
QoL of caregivers for patients diagnosed with mental illness is generally poor due to the added responsibilities and occupation of their time, energy and attention. This additional responsibility results in high levels of stress and caregivers may fail to have appropriate coping mechanisms. Interventions like support groups or counseling should be put in place to aid caregivers in their role and therefore improve QoL. This study adds to the international database of QoL literature and calls for more attention to be placed on caregivers in supporting their role and improving their QoL so as to lead to better patient outcomes among those diagnosed with mental illness.
背景
全球有4.5亿人患有精神和行为障碍。据估计，乌干达有35%的人口（即9574915人）患有某种形式的精神疾病。照顾者越来越多地承担起照顾这些患者的责任，由于他们所承担的社会和经济成本，这可能会影响他们的生活质量。本研究的目的是评估乌干达国家转诊医院中被诊断患有严重精神疾病患者的照顾者的生活质量。
方法
这是一项横断面研究。使用一个经过预测试的工具，该工具分为两个部分：社会人口学部分和经过验证的世界卫生组织生活质量简表（WHOQOL-BREF），从300名连续符合条件的参与者中收集数据。使用社会科学统计软件包（SPSS）版本22和Stata版本14进行数据录入和分析。
结果
在300名参与者中，57.3%的照顾者生活质量较差。与生活质量相关的具有统计学意义的因素包括环境（调整系数=0.016，95%置信区间=0.009-0.023）、照顾者对自身健康的满意度（调整系数=0.405，95%置信区间=0.33-0.487）、心理健康（调整系数=0.007，95%置信区间=0.0002-0.013）和教育水平（调整系数=0.148，95%置信区间=0.072-0.225））。
结论
由于承担了额外的责任以及时间、精力和注意力的投入，被诊断患有精神疾病患者的照顾者的生活质量普遍较差。这种额外的责任导致了高度的压力，照顾者可能没有适当的应对机制。应该建立支持小组或咨询等干预措施，以帮助照顾者履行其职责，从而提高生活质量。本研究补充了生活质量文献的国际数据库，并呼吁更加关注照顾者，以支持他们的角色并提高他们的生活质量，从而使被诊断患有精神疾病的患者获得更好的治疗效果。
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