Roesler Caroline, Pautre Isabelle, Thirry Dominique, Flores Soccoro, Chabbert Catherine, Savre Nikita, Pibarot Michèle, Seveau Marie-Aude, Dugas Karyn, Rollin Zoé, Dumont Sarah, Gaspar Nathalie
Centre Édouard-Rist, 14, rue Boileau, 75016 Paris, France.
Académie de Paris, Gustave Roussy, département de cancérologie de l'enfant et l'adolescent, 114, rue Édouard-Vaillant, 94805 Villejuif cedex, France.
Bull Cancer. 2016 Dec;103(12):979-989. doi: 10.1016/j.bulcan.2016.10.015. Epub 2016 Nov 15.
Socialisation, education, first jobs and autonomy are key steps to teenagers and young adults (TYA) integration into the society. The occurrence of a cancer in this population increases the difficulties. Although, suffering of cancer do affect TYA life journey at social, scholar and professional levels, from diagnosis to the after-cancer live and sometime forever, few studies exist in France. A national study on TYA with cancer (TYAC) social, scholar and professional pathways is on-going (ESPOIR-AJA). A national survey of the existing TYAC insertion support in 2013 by the "Insertion group" of groupe onco-hématologie adolescents et jeunes adultes (GO-AJA) revealed structured and ancient support at scholar level based on national governmental or associative structures, but insufficient and non-specific scholar help in secondary school and professional help. Specific initiatives have emerged since 2012 with the "Plan cancer 2". All these helps remain unequal across the country. A referential on TYAC social, scholar and professional insertion has been prepared by GO-AJA in collaboration with the association francophone des soins oncologiques de support (AFSOS). The impact of the action 9 of the nation "plan cancer 3" is awaited.
社会化、教育、初入职场和自主独立是青少年和青年融入社会的关键步骤。这一人群中患癌症会增加融入社会的难度。尽管癌症的折磨确实会在社会、学业和职业层面影响青少年和青年从诊断到癌症康复后的生活历程,甚至有时是终身影响,但在法国,相关研究却很少。一项关于患癌青少年和青年(TYAC)社会、学业和职业发展路径的全国性研究正在进行中(ESPOIR - AJA)。青少年和青年血液肿瘤学小组(GO - AJA)的“融入小组”在2013年对现有的TYAC融入支持情况进行的一项全国性调查显示,基于国家政府或协会机构,在学业层面存在结构化且由来已久的支持,但在中学阶段的学业帮助不足且缺乏针对性,职业帮助也不足。自2012年“癌症防治计划2”实施以来,出现了一些具体举措。但所有这些帮助在全国范围内仍然存在差异。GO - AJA与法语国家肿瘤支持护理协会(AFSOS)合作制定了一份关于TYAC社会、学业和职业融入的参考指南。人们期待国家“癌症防治计划3”的行动9能产生影响。