Basu Roy Robindra, Brandt Nicola, Moodie Nicolette, Motlagh Mitra, Rasanathan Kumanan, Seddon James A, Detjen Anne K, Kampmann Beate
Centre for International Child Health, Department of Paediatrics 2nd Floor, Medical School Building, St Mary's Campus, Imperial College London, London, W2 1PG, UK.
Vaccines and Immunity Theme, Medical Research Council (MRC) Unit The Gambia, Fajara, The Gambia.
BMC Int Health Hum Rights. 2016 Dec 8;16(1):32. doi: 10.1186/s12914-016-0105-z.
Until recently, paediatric tuberculosis (TB) has been relatively neglected by the broader TB and the maternal and child health communities. Human rights-based approaches to children affected by TB could be powerful; however, awareness and application of such strategies is not widespread.
We summarize the current challenges faced by children affected by TB, including: consideration of their family context; the limitations of preventive, diagnostic and treatment options; paucity of paediatric-specific research; failure in implementation of interventions; and stigma. We examine the articles of the Convention on the Rights of the Child (CRC) and relate them to childhood TB. Specifically, we focus on the five core principles of the CRC: children's inherent right to life and States' duties towards their survival and development; children's right to enjoyment of the highest attainable standard of health; non-discrimination; best interests of the child; and respect for the views of the child. We highlight where children's rights are violated and how a human rights-based approach should be used as a tool to help children affected by TB, particularly in light of the Sustainable Development Goals and their focus on universality and leaving no one behind. The article aims to bridge the gap between those providing paediatric TB clinical care and conducting research, and those working in the fields of human rights policy and advocacy to promote a human rights-based approach for children affected by TB based upon the Convention on the Rights of the Child.
直到最近,儿童结核病在更广泛的结核病及母婴健康领域相对受到忽视。基于人权的方法对于受结核病影响的儿童可能具有强大作用;然而,此类策略的知晓度和应用并不广泛。
我们总结了受结核病影响的儿童当前面临的挑战,包括:对其家庭背景的考量;预防、诊断和治疗选择的局限性;儿科特定研究的匮乏;干预措施实施不力;以及污名化。我们审视了《儿童权利公约》(CRC)的条款,并将它们与儿童结核病相关联。具体而言,我们聚焦于《儿童权利公约》的五项核心原则:儿童固有的生命权以及国家对其生存与发展的责任;儿童享有可达到的最高健康标准的权利;不歧视;儿童的最大利益;以及尊重儿童的意见。我们强调儿童权利在哪些方面受到侵犯,以及应如何将基于人权的方法作为一种工具来帮助受结核病影响的儿童,特别是鉴于可持续发展目标及其对普遍性和不让任何一个人掉队的关注。本文旨在弥合提供儿童结核病临床护理和开展研究的人员与从事人权政策及宣传领域工作的人员之间的差距,以促进基于《儿童权利公约》的针对受结核病影响儿童的人权方法。