智障母亲成年子女的经历：一项来自波兰的定性回顾性研究。
The experience of adult children of mothers with intellectual disability: A qualitative retrospective study from Poland.
作者信息
Wołowicz-Ruszkowska Agnieszka, McConnell David
机构信息
Department of Special Education, The Maria Grzegorzewska University, Warsaw, Poland.
Department of Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.
出版信息
J Appl Res Intellect Disabil. 2017 May;30(3):482-491. doi: 10.1111/jar.12322. Epub 2017 Jan 10.
BACKGROUND
Little is known about the experience of growing up with a mother with intellectual disability. The aim of this study was to explore this experience from the perspective of adult children.
METHOD
In-depth interviews with 23 adult children brought up by mothers with moderate-to-severe intellectual disability. The interview data were analysed using grounded theory methods.
RESULTS
The childhood experiences of the interviewees and the role their mothers played in their upbringing varied, depending in part on the involvement of extended family. It was the stigma of maternal intellectual disability, rather than their mother's functional limitations, that posed the greatest challenge.
CONCLUSION
Interviewees characterized their mothers and childhoods as different, yet ordinary. Understanding the social context, including but not limited to the availability of informal support, is critical to understanding the experience of children growing up with mothers with intellectual disability.
背景
对于在有智力残疾母亲的环境中成长的经历，人们了解甚少。本研究的目的是从成年子女的角度探索这种经历。
方法
对23名由中度至重度智力残疾母亲抚养长大的成年子女进行深入访谈。访谈数据采用扎根理论方法进行分析。
结果
受访者的童年经历以及他们的母亲在养育过程中所扮演的角色各不相同，部分取决于大家庭的参与程度。对他们构成最大挑战的是母亲智力残疾带来的耻辱感，而非母亲的功能限制。
结论
受访者将他们的母亲和童年描述为不同但又普通。理解社会背景，包括但不限于非正式支持的可得性，对于理解在有智力残疾母亲的环境中成长的孩子的经历至关重要。
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