Wei Holly, Roscigno Cecelia I, Swanson Kristen M
College of Nursing at East Carolina University, Greenville, NC, USA.
School of Nursing at University of North Carolina, Chapel Hill, NC, USA.
Heart Lung. 2017 May-Jun;46(3):166-171. doi: 10.1016/j.hrtlng.2017.01.007. Epub 2017 Feb 22.
Parents of children with congenial heart disease (CHD) face frequent healthcare encounters due to their child's care trajectory. With an emphasis on assuring caring in healthcare, it is necessary to understand parents' perceptions of healthcare providers' actions when their child undergoes heart surgery.
To describe parents' perceptions of healthcare providers' actions when their child is diagnosed with CHD and undergoes heart surgery.
This is a qualitative study with in-depth interviews. Parents of children with CHD were interviewed twice after surgery. We analyzed data using directed content analysis guided by Swanson Caring Theory.
Findings of the study indicate that parents perceive caring when providers seek to understand them (knowing); accompany them physically and emotionally (being with); help them (doing for); support them to be the best parents they can be (enabling); and trust them to care for their child (maintaining belief).
Healthcare providers play an irreplaceable role in alleviating parents' emotional toll when their child undergoes cardiac surgery. Providers' caring is an integral component in healthcare.
患有先天性心脏病(CHD)儿童的父母因其孩子的治疗过程而经常接触医疗保健服务。在强调确保医疗保健中的关怀时,有必要了解父母对孩子接受心脏手术时医疗保健提供者行为的看法。
描述父母对孩子被诊断患有CHD并接受心脏手术时医疗保健提供者行为的看法。
这是一项采用深入访谈的定性研究。患有CHD儿童的父母在手术后接受了两次访谈。我们使用以斯旺森关怀理论为指导的定向内容分析法对数据进行了分析。
研究结果表明,当医疗保健提供者试图了解他们(知晓);在身体和情感上陪伴他们(同在);帮助他们(为其做);支持他们成为所能成为的最佳父母(赋能);以及信任他们照顾自己的孩子(保持信念)时,父母会感受到关怀。
在孩子接受心脏手术时,医疗保健提供者在减轻父母的情感负担方面发挥着不可替代的作用。提供者的关怀是医疗保健的一个不可或缺的组成部分。