在第二次糖尿病 MILES-澳大利亚（MILES-2）研究中，横断面和前瞻性参与者组的队列特征。
Cohort profiles of the cross-sectional and prospective participant groups in the second Diabetes MILES-Australia (MILES-2) study.
机构信息
School of Psychology, Deakin University, Geelong, Victoria Australia.
The Australian Centre for Behavioural Research in Diabetes, Diabetes Victoria, Melbourne, Victoria, Australia.
出版信息
BMJ Open. 2017 Feb 28;7(2):e012926. doi: 10.1136/bmjopen-2016-012926.
PURPOSE
More research into the psychosocial aspects of diabetes is needed so that the health and quality of life of people with the condition can be improved. To fill this gap, we conducted the second Diabetes MILES-Australia study (MILES-2), a survey focused on psychological, behavioural and social aspects of diabetes. The aim of the MILES-2 study was to provide a (1) longitudinal follow-up of the original MILES 2011 study cohort; (2) cross-sectional assessment of a new cohort.
PARTICIPANTS
Eligible participants were English-speaking Australians with type 1 or type 2 diabetes, aged 18-75 years. Longitudinal cohort participants were mailed/emailed study invitations directly by researchers. Random sampling (stratified by diabetes type, insulin use, state) of the National Diabetes Services Scheme (NDSS) database and nationwide advertisements were used to recruit new cohort participants. The final sample included N=2342 eligible respondents (longitudinal cohort: n=504; 2015 new cohort: n=1838); 54% had type 2 diabetes.
FINDINGS TO DATE
Survey respondents were from an advantaged socioeconomic background compared to the general population. Respondents with type 1 diabetes were over-represented in the new cohort (45%) relative to the planned stratification (40% type 1 diabetes, 60% type 2 diabetes). Respondents with insulin-treated type 2 diabetes were under-represented in the new cohort relative to the stratified sampling (42% invited vs 50% response). Participants who completed both the 2011 and 2015 surveys were more likely than those completing the 2011 survey only to have type 1 diabetes, report a higher education and annual income, and live in metropolitan areas. Participant feedback indicated that the survey was perceived as relevant and valuable.
FUTURE PLANS
The depth and breadth of the data available in this large sample will highlight unmet needs and priority areas for future investigation and, crucially, will inform policy, programme and intervention development and evaluation in Australia.
目的
需要对糖尿病的社会心理方面进行更多研究，以改善患者的健康和生活质量。为了填补这一空白，我们进行了第二次澳大利亚 MILES 糖尿病研究（MILES-2），该研究侧重于糖尿病的心理、行为和社会方面。MILES-2 研究的目的是：（1）对 2011 年 MILES 原始研究队列进行纵向随访；（2）对新队列进行横断面评估。
参与者
符合条件的参与者是年龄在 18-75 岁、讲英语且患有 1 型或 2 型糖尿病的澳大利亚人。纵向队列的参与者由研究人员直接通过邮件/电子邮件收到研究邀请。通过全国糖尿病服务计划（NDSS）数据库的随机抽样（按糖尿病类型、胰岛素使用情况、州分层）和全国广告招募新队列的参与者。最终样本包括 2342 名符合条件的应答者（纵向队列：n=504；2015 年新队列：n=1838）；54%的参与者患有 2 型糖尿病。
迄今为止的发现
与一般人群相比，调查应答者具有优越的社会经济背景。与计划的分层（40% 1 型糖尿病，60% 2 型糖尿病）相比，新队列中 1 型糖尿病患者的比例过高（45%）。与分层抽样相比，新队列中接受胰岛素治疗的 2 型糖尿病患者比例过低（42% 受邀，50% 回应）。与仅完成 2011 年调查的参与者相比，完成 2011 年和 2015 年调查的参与者更有可能患有 1 型糖尿病、报告更高的教育和年收入水平，并且居住在大都市区。参与者的反馈表明，该调查被认为是相关且有价值的。
未来计划
这个大型样本中可用数据的深度和广度将突出未满足的需求和未来调查的优先领域，并且至关重要的是，将为澳大利亚的政策、项目和干预措施的制定和评估提供信息。
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