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脑死亡与器官获取调查问卷。

Questionnaire on Brain Death and Organ Procurement.

作者信息

Hammad Saleh, Alnammourah Manal, Almahmoud Farah, Fawzi Mais, Breizat Abdel-Hadi

机构信息

Jordanian Center for Organ Transplantation Directorate (JCOTD) and the Ministry of Health, Amman, Jordan.

出版信息

Exp Clin Transplant. 2017 Feb;15(Suppl 1):121-123. doi: 10.6002/ect.mesot2016.O115.

Abstract

OBJECTIVES

The subject of organs for transplant after brain death raises many concerns, including definition and timing of death, how to permit human organ transplant, and the idea of paying for organs. Many ethical concerns are raised regarding regulations and procedures for organ transplant in developing countries. These include where and how to obtain organs and the concept of justice in organ distribution.

MATERIALS AND METHODS

We administered 2682 questionnaires to 628 men and 2054 women over 24 months (range, 18 to 70 years old). We included people from universities, colleges, and the general public and asked questions on the circumstances of death, the conditions of conversations around organ donation, and reasons for acceptance or refusal of donation. The identical questionnaire, consisting of 8 questions, was administered twice: before and after a teaching session on brain death and organ procurement. The study was approved by our Ethical Review Committee and in accordance with the ethical guidelines of the 1975 Helsinki Declaration. Written informed consent was obtained from all participants.

RESULTS

We found that 72.1% understood brain death in the prequestionnaire and 88% understood brain death in the postquestionnaire, with 63.8% versus 68% accepting the concept of brain death, 50.6% versus 58.3% thinking that their religion is against brain death, 11.3% versus 11.3% carrying a donor card, 50.7% versus 58.9% wanting to carry a donor card, 46.4% versus 56.4% agreeing to give consent for organ donation if a relative was diagnosed with brain death, 28.3% versus 50% aware of the laws and regulations concerning brain death and organ donation and transplant in Jordan, and 35.4% versus 40% in agreement with the Presumed Consent Law, respectively.

CONCLUSIONS

In Jordan, along with legal requirements concerning brain death and organ donation and transplant, there is a lack of acceptance of organ donation after brain death, necessitating further work and activities to achieve self-sufficiency from donated organs.

摘要

目的

脑死亡后器官移植这一主题引发了诸多关注,包括死亡的定义和时间、如何允许人体器官移植以及器官买卖的问题。发展中国家器官移植的法规和程序引发了许多伦理问题。这些问题包括从何处以及如何获取器官以及器官分配中的公正概念。

材料与方法

我们在24个月内(年龄范围18至70岁)向628名男性和2054名女性发放了2682份问卷。我们纳入了来自大学、学院和普通公众的人群,并询问了关于死亡情况、围绕器官捐赠的谈话条件以及接受或拒绝捐赠的原因等问题。这份由8个问题组成的相同问卷在关于脑死亡和器官获取的教学课程前后各发放了一次。该研究得到了我们伦理审查委员会的批准,并符合1975年《赫尔辛基宣言》的伦理准则。所有参与者均获得了书面知情同意。

结果

我们发现,问卷前72.1%的人理解脑死亡,问卷后88%的人理解脑死亡;接受脑死亡概念的比例分别为63.8%和68%;认为其宗教反对脑死亡的比例分别为50.6%和58.3%;持有捐赠卡的比例分别为11.3%和11.3%;想要持有捐赠卡的比例分别为50.7%和58.9%;如果亲属被诊断为脑死亡,同意进行器官捐赠的比例分别为46.4%和56.4%;知晓约旦关于脑死亡及器官捐赠和移植法律法规的比例分别为28.3%和50%;同意推定同意法的比例分别为35.4%和40%。

结论

在约旦,除了关于脑死亡及器官捐赠和移植的法律要求外,脑死亡后器官捐赠的接受度较低,需要进一步开展工作和活动以实现器官捐赠的自给自足。

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