Onwumere Juliana, Glover Naomi, Whittaker Sarah, Rahim Shireen, Chu Man Lai, James Gareth, Khan Sanna, Afsharzadegan Roya, Seneviratne Saal, Harvey Raythe, Georgiades Anna, Raune David
Department of Psychology, Institute of Psychiatry, Psychiatry & Neuroscience King's College London, London, UK.
Department of Clinical, Educational and Health Psychology, University College London, London, UK.
Early Interv Psychiatry. 2018 Dec;12(6):1144-1150. doi: 10.1111/eip.12430. Epub 2017 May 18.
At first-episode psychosis (FEP), many patients will be routed within familial networks and supported by informal carers who are predominately close family members such as parents. Carer burden, distress and poorer coping styles are associated with different illness beliefs. The current study sought to examine the impact and acceptability of a 3 session, cognitively informed, group intervention targeting illness beliefs previously linked to distress and poorer caregiving experiences in FEP carers.
Carers attending a routine FEP service were invited to attend the group intervention and completed a measure of illness beliefs at baseline and post intervention.
Data on 68 carers with complete datasets are presented. Carers were predominately females (64.2%). Group attendance was linked to positive improvements in carer baseline beliefs about the negative consequences of the illness for the patient and themselves, attributions of blame about the illness to the patient and themselves and their overall understanding about the illness. Significant improvements in their understanding of the illness timeline and course, and confidence in dealing with difficulties were also identified.
A cognitively informed group approach to targeting the less adaptive illness beliefs reported by FEP carers may offer an effective and acceptable pathway to facilitate their understanding of the illness and adjustment. Further studies using controlled designs are required.
在首发精神病(FEP)患者中,许多患者会在家庭网络中接受照料,并得到主要由父母等近亲组成的非正式照料者的支持。照料者的负担、痛苦和较差的应对方式与不同的疾病认知有关。本研究旨在探讨一种为期3节、以认知为导向的团体干预措施对FEP照料者的影响和可接受性,这些照料者的疾病认知此前被认为与痛苦和较差的照料经历有关。
邀请参加常规FEP服务的照料者参加团体干预,并在基线和干预后完成一份疾病认知量表。
呈现了68名拥有完整数据集的照料者的数据。照料者主要为女性(64.2%)。团体参与与照料者对疾病给患者和自身带来的负面后果的基线认知、将疾病归咎于患者和自身以及对疾病的整体理解的积极改善有关。还发现他们对疾病病程和进程的理解以及应对困难的信心有显著提高。
针对FEP照料者报告的适应性较差的疾病认知采取以认知为导向的团体方法,可能为促进他们对疾病的理解和调整提供一条有效且可接受的途径。需要进一步采用对照设计进行研究。