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“像其他人一样工作”——一位脊髓损伤患者的人生叙事

"To Work Just Like Anyone Else"-A Narrative from a Man Aging with Spinal Cord Injury.

作者信息

Lundström Ulrica, Lilja Margareta, Isaksson Gunilla

机构信息

Department of Health Science, Luleå University of Technology, S-971 87 Luleå, Sweden.

Department of Health Sciences, Lunds University, Lund S-221 00, Sweden.

出版信息

Healthcare (Basel). 2017 Nov 9;5(4):87. doi: 10.3390/healthcare5040087.

Abstract

People aging with spinal cord injury (SCI) develop medical problems commonly associated with the aging process at a younger age than the general population. However, research about how the life story changes and how meaning will be experienced in occupations is lacking. The aim was to describe and offer an explanation of how a man experienced meaning in everyday occupations while aging with an SCI. Four narrative interviews were performed over a four-year period, with a man in his fifties, who lived with SCI for 39 years. The narrative analysis generated an overall plot, named "To Work Just Like Anyone Else," and gives a picture of his experiences, thoughts, and reflections about meaning in occupations, from when he became injured to the present, and in relation to his future. His life story is characterized by secondary health complications, and his experiences of negotiating with the aging body and making choices to continue working. Further, how occupational risk factors, e.g., imbalance, alienation, and deprivation, occur as a result of lack of rehabilitation and support from social systems is addressed. Future research should explore how rehabilitation and social systems can support people aging with SCI to experience meaning in everyday occupations and to have balance in everyday life.

摘要

脊髓损伤(SCI)患者比普通人群在更年轻的年龄就会出现与衰老过程相关的医学问题。然而,关于生活故事如何变化以及在职业中如何体验意义的研究却很缺乏。本研究旨在描述并解释一名男性在因脊髓损伤而衰老的过程中,是如何在日常职业中体验意义的。在四年时间里,对一名五十多岁、脊髓损伤39年的男性进行了四次叙事访谈。叙事分析得出了一个名为“像其他人一样工作”的总体情节,并描绘了他从受伤到现在以及与未来相关的职业中关于意义的经历、想法和思考。他的生活故事以继发性健康并发症为特征,以及他与衰老身体进行抗争并做出继续工作选择的经历。此外,还探讨了由于缺乏康复和社会系统支持而导致的职业风险因素,如失衡、疏离和匮乏。未来的研究应该探索康复和社会系统如何能够支持脊髓损伤患者在日常职业中体验意义并在日常生活中保持平衡。

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