Cottingham Marci D, Fisher Jill A
Department of Sociology, University of Amsterdam, Amsterdam, The Netherlands.
Department of Social Medicine and Center for Bioethics, University of North Carolina, Chapel Hill, NC, USA.
Health Risk Soc. 2017;19(5-6):284-300. doi: 10.1080/13698575.2017.1350638. Epub 2017 Jul 11.
In this article, we explore the role that fictional media (film and television) play in evoking and managing collective and individual anxieties towards biomedical research. We draw on two data sets: fictional media depictions of human research subjects and interviews with Phase I clinical trial participants conducted in the USA in 2013. We show how fictional media provide an outlet for collective uncertainties surrounding biomedical research through depictions that mock and dehumanise research participants, using such emotions of shock, disgust, pity, amusement and humour. We analyse how themes from fictional media are also used to manage actual clinical trial participants' own anxiety concerning the unknown risks of research participation. By contrasting the reality of their research experience with fantasy derived from entertainment media, clinical trial participants minimise the seriousness of the side effects they have or may experience in actual Phase I clinical trials. We conclude that fictional media serve an important role in the collective and individual management of risk emotion.
在本文中,我们探讨虚构媒体(电影和电视)在引发和管理对生物医学研究的集体及个人焦虑方面所起的作用。我们借鉴了两个数据集:对人类研究对象的虚构媒体描绘以及2013年在美国对一期临床试验参与者进行的访谈。我们展示了虚构媒体如何通过对研究参与者进行嘲讽和非人化的描绘,利用震惊、厌恶、怜悯、娱乐和幽默等情绪,为围绕生物医学研究的集体不确定性提供一个宣泄口。我们分析了虚构媒体中的主题如何也被用于管理实际临床试验参与者自身对参与研究的未知风险的焦虑。通过将他们的研究经历现实与源自娱乐媒体的幻想进行对比,临床试验参与者将他们在实际一期临床试验中已经或可能经历的副作用的严重性降到最低。我们得出结论,虚构媒体在集体和个人对风险情绪的管理中发挥着重要作用。