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临终关怀信息系统及其与死亡首选地点和实际地点一致性的关联。

The Hospice Information System and its association with the congruence between the preferred and actual place of death.

作者信息

Lin Huang-Ren, Wang Jen-Hung, Hsieh Jyh-Gang, Wang Ying-Wei, Kao Sheng-Lun

机构信息

Department of Family Medicine, Buddhist Tzu Chi General Hospital, Hualien, Taiwan.

Department of Medical Research, Buddhist Tzu Chi General Hospital, Hualien, Taiwan.

出版信息

Tzu Chi Med J. 2017 Oct-Dec;29(4):213-217. doi: 10.4103/tcmj.tcmj_125_17.

Abstract

OBJECTIVE

A Hospice Information System (HIS) developed in eastern Taiwan in 2012 aimed to improve the quality of hospice care through an integrated system that provided telemetry-based vital sign records, online 24/7 consultations, online video interviews, and online health educations. The purpose of this study was to explore the congruence between the preferred and actual place of death (POD) among patients who received HIS services.

MATERIALS AND METHODS

A retrospective study was performed from January 2012 to August 2016. Data from patients enrolled in the HIS who died during this period were included. Data on basic characteristics and the actual and preferred POD were obtained from the HIS database. The primary outcome was the congruence between the preferred and actual POD. Secondary outcomes were comparisons between patients who did and did not achieve their preferred POD. Further comparisons between patients who did and did not achieve home death were also performed.

RESULTS

In total, we enrolled 481 patients who received HIS services and died. Of them, 444 (92.3%) died at their preferred POD. Patients who preferred an inpatient hospice as their POD had higher achievement rate than those who wanted a home death. High-intensity HIS utilization was associated with a higher likelihood of home death than low-intensity HIS utilization. Patients living in areas distant from the medical center had lower achievement of home death than those living in local areas.

CONCLUSIONS

This study suggested that patients enrolled in the HIS had high congruence between the actual and preferred POD.

摘要

目的

2012年在台湾东部开发的临终关怀信息系统(HIS)旨在通过一个集成系统提高临终关怀质量,该系统提供基于遥测的生命体征记录、全天候在线咨询、在线视频访谈和在线健康教育。本研究的目的是探讨接受HIS服务的患者中,首选死亡地点(POD)与实际死亡地点之间的一致性。

材料与方法

进行一项回顾性研究,研究时间为2012年1月至2016年8月。纳入在此期间登记在HIS中并死亡的患者的数据。从HIS数据库中获取基本特征以及实际和首选POD的数据。主要结局是首选POD与实际POD之间的一致性。次要结局是实现和未实现首选POD的患者之间的比较。还对在家中死亡和未在家中死亡的患者进行了进一步比较。

结果

我们总共纳入了481名接受HIS服务并死亡的患者。其中,444名(92.3%)在其首选POD死亡。首选住院临终关怀作为POD的患者的实现率高于希望在家中死亡的患者。与低强度使用HIS相比,高强度使用HIS与在家中死亡的可能性更高相关。居住在远离医疗中心地区的患者在家中死亡的实现率低于居住在当地的患者。

结论

本研究表明,登记在HIS中的患者在实际和首选POD之间具有高度一致性。

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