Scharp Kristina M, Barker Brittan A, Rucker Sidney N, Jones Hannah D
Utah State University, Department of Languages, Philosophy, and Communication Studies, Logan, UT 84322.
J Deaf Stud Deaf Educ. 2018 Apr 1;23(2):131-139. doi: 10.1093/deafed/enx060.
We aimed to determine the types of identities hearing parents construct when telling online stories about their children with hearing loss (HL) who use cochlear implants (CIs). To do so, we employed a qualitative design and sampled 20 different blogs United States origins and written by parents of children who use CIs. We then used thematic narrative analysis (Braun & Clarke, 2006; Riessman, C. K. (2008). Narrative methods for the human sciences. Thousand Oaks, CA: Sage Publications.) to uncover recurring themes from these parents' blogs. The themes then allowed us to assign identities to the parents. Four identities emerged in the parents' stories: (1) advocates, (2) resilient parents, (3) obedient worriers, and (4) matter-of-fact narrators. Identifying and understanding these parent identities is a first step toward improving theoretical and clinical insights into parents' perspectives and experiences following their children's diagnosis of HL. Such insights could ultimately improve audiologists' abilities to help families seek out, implement, and follow-through with family-centered hearing healthcare.
我们旨在确定有听力的父母在讲述关于他们使用人工耳蜗(CI)的失聪孩子的网络故事时构建的身份类型。为此,我们采用了定性设计,并抽样了20个来自美国、由使用人工耳蜗孩子的父母撰写的不同博客。然后,我们使用主题叙事分析(布劳恩和克拉克,2006年;里斯曼,C.K.(2008年)。《人文科学的叙事方法》。加利福尼亚州千橡树:塞奇出版社)从这些父母的博客中发掘反复出现的主题。这些主题进而使我们能够为父母赋予身份。父母故事中出现了四种身份:(1)倡导者,(2)坚韧的父母,(3)顺从的担忧者,以及(4)实事求是的叙述者。识别和理解这些父母身份是朝着改善对父母在孩子被诊断为失聪后的观点和经历的理论及临床见解迈出的第一步。这样的见解最终可以提高听力学家帮助家庭寻找、实施并坚持以家庭为中心的听力保健的能力。