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癌症患儿营养问题评估及其家长的信息需求:家长视角

Assessment of Nutritional Problems in Pediatric Patients with Cancer and the Information Needs of Their Parents: A Parental Perspective.

作者信息

Arpaci Tuba, Toruner Ebru Kilicarslan, Altay Naime

机构信息

Faculty of Health Sciences, Nursing Department Gazi University, Ankara, Turkey.

出版信息

Asia Pac J Oncol Nurs. 2018 Apr-Jun;5(2):231-236. doi: 10.4103/apjon.apjon_78_17.

Abstract

OBJECTIVE

The majority of problems and symptoms occur in the gastrointestinal system in children with cancer. Parents have difficulty in coping with the nutritional problems and changing routines of children and need support in this respect. This study aimed to assess the nutritional problems of children with cancer and the information needs of their parents.

METHODS

This descriptive study was performed among children with cancer aged 3-18 years and their parents ( = 69). The data were collected through a data collection form developed by the researchers based on the literature.

RESULTS

The most prominent nutritional problems experienced by children were loss of appetite (85.5%), nausea (84.1%), vomiting (81.2%), fatigue (79.7%), and mucositis (66.7%). According to the parents, the factors causing these nutritional problems in children were physiological factors (100%) and the foods given to children in the hospital (65.2%). The parents mostly needed information about food-drug interactions (58.0%), food-disease interactions (52.2%), foods that children with neutropenia should avoid or should eat (neutropenic diet) (46.4%), and frequency of nutritional intake (36.2%).

CONCLUSIONS

This study has shown that most children experience at least one nutritional problem, and the parents need comprehensive and regular information about nutrition. Pediatric oncology nurses have a significant responsibility in the evaluation, education, and monitoring of these children.

摘要

目的

癌症患儿的大多数问题和症状出现在胃肠道系统。家长在应对患儿的营养问题和日常习惯改变方面存在困难,在这方面需要支持。本研究旨在评估癌症患儿的营养问题及其家长的信息需求。

方法

本描述性研究在3至18岁的癌症患儿及其家长(n = 69)中进行。数据通过研究人员根据文献编制的数据收集表收集。

结果

患儿经历的最突出的营养问题是食欲不振(85.5%)、恶心(84.1%)、呕吐(81.2%)、疲劳(79.7%)和黏膜炎(66.7%)。据家长称,导致患儿出现这些营养问题的因素是生理因素(100%)和医院给患儿提供的食物(65.2%)。家长最需要的信息是食物与药物的相互作用(58.0%)、食物与疾病的相互作用(52.2%)、中性粒细胞减少症患儿应避免或应食用的食物(中性粒细胞减少饮食)(46.4%)以及营养摄入频率(36.2%)。

结论

本研究表明,大多数患儿至少经历一种营养问题,家长需要关于营养的全面且定期的信息。儿科肿瘤护士在对这些患儿的评估、教育和监测方面负有重大责任。

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