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介绍《莱比锡健康地图集》中研究数据管理的技术方面。

Introducing Technical Aspects of Research Data Management in the Leipzig Health Atlas.

作者信息

Meineke Frank A, Löbe Matthias, Stäubert Sebastian

机构信息

Institute for Medical Informatics, Statistics and Epidemiology (IMISE), Universität Leipzig, Germany.

出版信息

Stud Health Technol Inform. 2018;247:426-430.

Abstract

Medical research is an active field in which a wide range of information is collected, collated, combined and analyzed. Essential results are reported in publications, but it is often problematic to have the data (raw and processed), algorithms and tools associated with the publication available. The Leipzig Health Atlas (LHA) project has therefore set itself the goal of providing a repository for this purpose and enabling controlled access to it via a web-based portal. A data sharing concept in accordance to FAIR and OAIS is the basis for the processing and provision of data in the LHA. An IT architecture has been designed for this purpose. The paper presents essential aspects of the data sharing concept, the IT architecture and the methods used.

摘要

医学研究是一个活跃的领域,在这个领域中,大量的信息被收集、整理、合并和分析。重要的研究结果会在出版物中报道,但与该出版物相关的数据(原始数据和处理后的数据)、算法和工具往往难以获取。因此,莱比锡健康地图集(LHA)项目设定了一个目标,即为此目的提供一个存储库,并通过基于网络的门户实现对其的受控访问。符合FAIR和OAIS的数据共享概念是LHA中数据处理和提供的基础。为此设计了一种IT架构。本文介绍了数据共享概念、IT架构和所使用方法的基本方面。

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