Reydon Thomas Ac, Kampourakis Kostas, Patrinos George P
Leibniz Universität Hannover, Institute of Philosophy, Hannover, Germany.
GEITONAS School, Secretariat of Educational Research & Development, Athens, Greece.
Per Med. 2012 Aug;9(6):633-643. doi: 10.2217/pme.12.69.
Misconceptions about genetics and genomics, such as notions of genetic determinism and the existence of 'genes for' particular traits, are widespread both in educational contexts and in the public perception of genetics and genomics. Owing to such misunderstandings, the prospect of personalized medicine often raises concerns with the general public about possible adverse societal consequences of the technologies that are implemented. Among the questions that are to be addressed in this context are: to what extent is personalized medical treatment possible? Does it require access to sensitive personal data? Who should be given such access? What other ethical issues might be raised by personalized medicine? How could these be answered? We argue that scientists have a professional responsibility to effectively communicate current knowledge and views about potential applications to the public in order to better address and resolve such issues.
关于遗传学和基因组学的误解,比如基因决定论的观念以及特定性状“基因”的存在,在教育领域以及公众对遗传学和基因组学的认知中都广泛存在。由于这些误解,个性化医疗的前景常常引发公众对所应用技术可能产生的不良社会后果的担忧。在此背景下需要解决的问题包括:个性化医疗在多大程度上可行?它是否需要获取敏感的个人数据?谁应有权获取这些数据?个性化医疗还可能引发哪些其他伦理问题?如何回答这些问题?我们认为,科学家有专业责任向公众有效传达关于潜在应用的当前知识和观点,以便更好地应对和解决此类问题。