非洲基因组学研究和生物样本库广泛同意的不断演变的观点。2015年5月11日第二届H3Africa伦理咨询会议报告。
Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015.
作者信息
de Vries J, Littler K, Matimba A, McCurdy S, Ouwe Missi Oukem-Boyer O, Seeley J, Tindana P
机构信息
Department of Medicine, University of Cape Town, Old Main Building, Groote Schuur Hospital, Observatory, 7925, Cape Town, South Africa.
Wellcome Trust, London, United Kingdom.
出版信息
Glob Health Epidemiol Genom. 2016 Jul 25;1:e13. doi: 10.1017/gheg.2016.5. eCollection 2016.
A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible.
一份关于2015年5月11日在赞比亚利文斯通举行的第二届H3非洲伦理咨询会议的报告。该会议展示了非洲研究伦理委员会在将广泛同意作为基因组学研究和生物样本库的一种同意选项的思考方面取得的显著进展。会议最后呼吁与非洲大陆各地的政策制定者进行更广泛的接触，以帮助他们认识到在缺乏指导和监管的领域有此需求，并在适当且可能的情况下探索协调统一。
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