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了解美国印第安女性癌症幸存者的社会和社区支持网络。

Understanding the social and community support networks of American Indian women cancer survivors.

作者信息

Lee Yeon-Shim, Burnette Catherine E, Liddell Jessica, Roh Soonhee

机构信息

a School of Social Work, San Francisco State University , San Francisco , CA , USA.

b School of Social Work , Tulane University , New Orleans , LA , USA.

出版信息

J Evid Inf Soc Work. 2018 Sep-Oct;15(5):481-493. doi: 10.1080/23761407.2018.1455162. Epub 2018 Jul 6.

Abstract

Cancer is the leading cause of death among American Indian and Alaska Native (AI/AN) women. Although cancer disparities among AI women are alarming, there is littlle research focused on the topic of social support and cancer treatment and outcomes. A community advisory board was used to develop and administer the project, and a qualitative descriptive study methodology was used. This research was conducted in partnership with two community-based hospitals in the Northern Plains. The sample included 43 AI female cancer survivors who were interviewed with a semi-structured interview guide. The data were analyzed using content analysis. Emergent themes revealed that AI cancer survivors' non-familial support systems included friends (n = 12), support groups (n = 6), churches (n = 10), co-workers (n = 5), communities (n = 4), support from health practitioners (n = 3), and additional forms of support. Results indicate that survivors' networks are diverse and support broad prevention programs that reach out to churches, community groups, and online forums. These sources of supports can be enhanced through sustainable community-based infrastructures.

摘要

癌症是美国印第安人和阿拉斯加原住民(AI/AN)女性的主要死因。尽管AI女性中的癌症差异令人担忧,但很少有研究关注社会支持与癌症治疗及预后这一主题。一个社区咨询委员会被用来开展和管理该项目,并采用了定性描述性研究方法。这项研究是与北部平原的两家社区医院合作进行的。样本包括43名AI女性癌症幸存者,她们接受了半结构化访谈指南的访谈。数据采用内容分析法进行分析。新出现的主题显示,AI癌症幸存者的非家庭支持系统包括朋友(n = 12)、支持小组(n = 6)、教会(n = 10)、同事(n = 5)、社区(n = 4)、来自医疗从业者的支持(n = 3)以及其他形式的支持。结果表明,幸存者的网络是多样的,并支持面向教会、社区团体和在线论坛的广泛预防项目。这些支持来源可以通过可持续的社区基础设施得到加强。

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