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认知斗争:倡导在促进心理健康中的认知正义和权利中的作用。

Epistemic struggles: The role of advocacy in promoting epistemic justice and rights in mental health.

机构信息

Health Services Management Centre and Institute for Mental Health, UK.

Centre for Citizenship and Community, University of Central Lancashire, UK.

出版信息

Soc Sci Med. 2018 Dec;219:36-44. doi: 10.1016/j.socscimed.2018.10.003. Epub 2018 Oct 10.

Abstract

Advocacy for people using health and social care services is widely promoted but its theoretical foundation is under-developed and its impact poorly conceptualised. This paper explores the liberatory potential of independent advocacy, using Fricker's concept of 'epistemic injustice' as a framework. People experiencing mental distress are particularly vulnerable to epistemic injustices as a consequence of deeply embedded social stigma resulting in a priori assumptions of irrationality and unreliability such that their knowledge is often discounted or downgraded. The mental health service user/survivor movement is at the forefront of validating personal experience and narrative to secure a different ontological and epistemological basis for mental distress. A foundational strand of this is advocacy to enable people to give voice to their experience. The case of independent mental health advocacy (IMHA) services under mental health legislation in England, provides an opportunity to critically examine whether advocacy can promote epistemic justice as a result of the legally sanctioned encounter between clinical assessment and subjective experience, pivoting on judgements about risk. This paper draws on empirical data from a national evaluation of IMHA services, which included 90 individual interviews with people subject to detention and three focus groups with mental health service users. Fricker's concept of epistemic injustice is used as a lens to investigate how this type of advocacy might mitigate forms of epistemic injustice, and thereby promote greater social justice in mental health. The concept of epistemic injustice provides a valuable theoretical basis for understanding the worth of advocacy in addressing testimonial injustice as well as its relative weakness in overcoming hermeneutical injustice. The challenge of independent advocacy to the dominant discourse within mental health is considered and questions raised about the place of advocacy in modern democratic mental health systems.

摘要

倡导人们使用医疗保健服务已得到广泛推广,但该理念的理论基础尚不完善,其影响也尚未得到充分的概念化。本文以弗雷克的“认识不公”概念为框架,探讨独立倡导的解放潜力。由于社会污名根深蒂固,导致人们在体验精神困扰时特别容易受到认识不公的影响,这种污名导致人们预先假设他们是非理性和不可靠的,从而使他们的知识经常被低估或贬低。精神健康服务使用者/幸存者运动走在验证个人经验和叙事的前列,以确保为精神困扰提供不同的本体论和认识论基础。这一运动的一个基础支柱是倡导,以使人们能够表达自己的经验。在英格兰的精神卫生立法下,独立精神健康倡导(IMHA)服务提供了一个机会,可以批判性地审视倡导是否可以通过临床评估和主观经验之间的法律认可的相遇来促进认识公正,其关键在于对风险的判断。本文利用全国范围内对 IMHA 服务的评估的实证数据,该评估包括对 90 名被拘留者的个人访谈和 3 次精神健康服务使用者焦点小组。弗雷克的认识不公概念被用作一种视角,以研究这种类型的倡导如何减轻认识不公的形式,从而促进精神健康领域的更大社会公正。认识不公的概念为理解倡导在解决证言不公以及在克服解释不公方面的相对弱点方面的价值提供了有价值的理论基础。本文还考虑了独立倡导对精神健康领域主流话语的挑战,并对倡导在现代民主精神健康系统中的地位提出了质疑。

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