Pudelewicz Anna, Talarska Dorota, Bączyk Grażyna
Department of Nursing Practice, Poznan University of Medical Sciences, Poznan, Poland.
Department of Preventive Medicine, Poznan University of Medical Sciences, Poznan, Poland.
Scand J Caring Sci. 2019 Jun;33(2):336-341. doi: 10.1111/scs.12626. Epub 2018 Oct 31.
Alzheimer's disease is a progressive, degenerative brain disease of unknown aetiology. It is characterised by a gradual deterioration of cognitive processes, especially memory, orientation and thinking. With the deepening of Alzheimer's disease, the independence of patients is increasingly limited, what results in an increased involvement of caregivers in care. Excessive duties contribute to the development of caregiver burnout.
The aim of the study was to examine the level of feeling of burden in caregivers of patients with Alzheimer's disease and to determine the relationship between selected parameters and the feeling of burden.
The study included 55 people with Alzheimer's disease and their caregivers. In order to test the level of the burden, the Polish version of Caregiver Burden Scale was used. The level of self-esteem was assessed using the Polish version of the Rosenberg Self-Esteem Scale.
The total result of the level of burden of caregivers of people with Alzheimer's disease, according to the Caregiver Burden Scale, was 2.6 points. There was a significant relationship between the feeling of burden and the caregiver's gender, the lack of free time, the number of hours devoted to day care, the number of years of patient care, the degree of a caregiver's self-assessment and the progression of the patient's disease.
In the examined group of caregivers of people with Alzheimer's disease and according to the Rosenberg Self-Esteem Scale, the medium level of care burden and the average level of self-esteem were prevailing.
阿尔茨海默病是一种病因不明的进行性退行性脑病。其特征是认知过程逐渐恶化,尤其是记忆、定向和思维。随着阿尔茨海默病病情的加重,患者的独立性越来越受限,这导致照顾者更多地参与护理。过多的职责会导致照顾者倦怠的发生。
本研究的目的是调查阿尔茨海默病患者照顾者的负担感受水平,并确定所选参数与负担感受之间的关系。
该研究纳入了55名阿尔茨海默病患者及其照顾者。为了测试负担水平,使用了波兰语版的照顾者负担量表。自尊水平采用波兰语版的罗森伯格自尊量表进行评估。
根据照顾者负担量表,阿尔茨海默病患者照顾者的总负担水平得分为2.6分。负担感受与照顾者的性别、缺乏空闲时间、日间护理时长、照顾患者的年数、照顾者的自我评估程度以及患者疾病的进展之间存在显著关系。
在所研究的阿尔茨海默病患者照顾者群体中,根据罗森伯格自尊量表,照顾负担处于中等水平,自尊水平处于平均水平。