Department of Child and Adolescent Medicine, CHU Rennes Hôpital Sud, Rennes Cedex 2.
CHU Angers, Paediatric Unit, Angers.
J Pediatr Gastroenterol Nutr. 2019 Apr;68(4):541-546. doi: 10.1097/MPG.0000000000002207.
Inflammatory bowel diseases (IBDs) are chronic diseases which negatively affect the schooling of children. The aim is to analyze school absenteeism and its causes in children followed for IBD.
A prospective multicenter study of IBD patients aged from 5 to 18 years old, from September 2016 to June 2017. Data on absenteeism and its causes were collected via a monthly questionnaire completed by patients or their family by mail. The results were compared with existing data supplied by the school authorities (497 students without IBD divided by class).
A total of 106 patients (62 boys), median age of 14 (5-18), were included. The global response rate was 83.1%. The patients with IBD were absent an average of 4.8% ± 5.5% of school days during the school year, against 3.2% ± 1.6% for non IBD group (P = 0.034). Digestive disorders accounted for 34% of the causes of absenteeism. Approximately 27% of the absences were due to scheduled events (hospitalizations, endoscopy, or consultations). By excluding the absences for scheduled care, the rate of school absenteeism of patients with IBD is significantly lower than that of non-IBD group.
Children with IBD are more frequently absent from school than non-IBD group. The main cause of school absenteeism appears to be associated with the disease itself. The share of scheduled absenteeism is quite large. The organization and scheduling of the patients' care path must be a priority to maximally limit the negative impact of their disease on the patients' schooling.
炎症性肠病(IBD)是一种慢性病,会对儿童的学业产生负面影响。本研究旨在分析接受 IBD 治疗的儿童的缺课情况及其原因。
这是一项于 2016 年 9 月至 2017 年 6 月进行的前瞻性多中心研究,纳入了年龄在 5 至 18 岁的 IBD 患者。通过每月由患者或其家属通过邮件填写的问卷收集缺课和缺课原因的数据。将结果与学校当局提供的现有数据(497 名无 IBD 的学生按班级划分)进行比较。
共纳入 106 名患者(62 名男性),中位年龄为 14 岁(5-18 岁),整体应答率为 83.1%。IBD 患者在学年期间平均缺课 4.8%±5.5%,而非 IBD 组为 3.2%±1.6%(P=0.034)。消化系统疾病占缺课原因的 34%。大约 27%的缺课是由于计划中的活动(住院、内镜检查或就诊)。排除因计划治疗而缺课的情况后,IBD 患者的缺课率明显低于非 IBD 组。
与非 IBD 组相比,IBD 患儿更常缺课。缺课的主要原因似乎与疾病本身有关。计划缺课的比例相当大。必须优先组织和安排患者的治疗路径,以最大限度地减少疾病对患者学业的负面影响。