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患者参与的能力:患者体验让我们对未来的启示

The Capacity for Patient Engagement: What Patient Experiences Tell Us About What's Ahead.

作者信息

Canfield Carolyn

机构信息

Citizen-patient who volunteers across Canada and internationally to expand system partnerships with patients, carers and communities. Her work since 2008 earned her recognition as Canada's first Patient Safety Champion and faculty appointment at the University of British Columbia.

出版信息

Healthc Q. 2018 Dec;21(SP):68-72. doi: 10.12927/hcq.2018.25635.

Abstract

Although great achievements in patient engagement merit celebration, many patient collaborators recognize growing gaps are straining the promise of seamless partnership. Recruitment is failing to keep pace with demands for diversity and expertise. Attempts to sustain enthusiasm face volunteer burnout and dropout. The investment in professional capacity to partner with patients contrasts sharply with the missing equivalent for patients asked to meet ever more demanding roles. While peer-led initiatives attempt self-help, more is needed to support patients to fulfill the potential for fully diverse, competent and fulfilling collaboration across all facets of healthcare.

摘要

尽管患者参与方面取得的巨大成就值得庆贺,但许多患者合作伙伴认识到,不断扩大的差距正在损害无缝合作的前景。招募工作未能跟上对多样性和专业知识的需求。维持热情的努力面临志愿者倦怠和退出的问题。在与患者合作的专业能力方面的投入,与要求患者承担日益苛刻的角色所缺乏的同等投入形成鲜明对比。虽然同伴主导的倡议尝试自助,但还需要更多支持,以帮助患者发挥潜力,在医疗保健的各个方面实现完全多样化、有能力且令人满意的合作。

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