Department of Medicine and Occupational Health, Assistance Publique Hopitaux de Marseille, Marseille, France.
Adolescent Psychiatry Service, Assistance Publique Hopitaux de Marseille, Marseille, France.
Disabil Rehabil. 2020 Jul;42(14):1987-1994. doi: 10.1080/09638288.2018.1544297. Epub 2019 Jan 22.
This pilot study describes the socio-professional development and quality of life of young adults with Asperger syndrome in France. Those young adults, between 18 and 30 years old, receiving care in a child psychiatry department for autistic spectrum disorder, were requested to respond to the Ad Hoc, World Health Organization Quality Of Life - Bref and Copenhagen psychosocial questionnaires regarding their socio-professional background and feelings about their future. Of the 79 eligible subjects, 24 were selected to participate in our study. Their average age at the time of the pilot study was 22.2 years (standard deviation 3.4 years), and their average age when they were diagnosed was 17.5 years (standard deviation 3.7 years.). There were 54% who reported a psychiatric comorbidity anxiety disorder. Half stated they had completed secondary school and benefitted from being professionally employed. During this study, only six were employed, while the others remained financially dependent on their parents. The group's quality of life self-assessment scores were significantly lower compared to the French general population in overall psychology (43.6 versus 68.7) and social relationships (48.9 versus 76.5). However, the study's participants perceived work as an important means to their personal development. Hence, in order to cope with their difficulties, they hoped to benefit from customized support adapted to their autistic disorder and for their workplace colleagues to be better informed about Asperger syndrome.: Our results are in line with international data. Additional studies need to be done in order to determine socio-professional integration factors and, in particular, the integration of potential contributions by occupational health departments with those social and medical teams supporting these young adults.Implications for rehabilitationYoung adults with Asperger syndrome benefit from the support of their family in determining their professional goals.Support may be required to enhance social and communicative abilities to help integration.Employees would benefit from information on the syndrome and how best to support.
这项初步研究描述了法国阿斯伯格综合征青年的社会职业发展和生活质量。这些年龄在 18 至 30 岁之间的年轻人在儿童精神病学部门接受自闭症谱系障碍的治疗,他们被要求回答世界卫生组织生活质量 - 简要问卷和哥本哈根心理社会问卷,内容涉及他们的社会职业背景和对未来的感受。在 79 名符合条件的受试者中,有 24 名被选中参加我们的研究。他们在初步研究时的平均年龄为 22.2 岁(标准差为 3.4 岁),平均诊断年龄为 17.5 岁(标准差为 3.7 岁)。有 54%的人报告有精神科共病,焦虑症。有一半的人表示他们完成了中学学业,并受益于专业就业。在这项研究中,只有 6 人就业,而其他人仍然在经济上依赖父母。与法国普通人群相比,该组的生活质量自评分数在总体心理学(43.6 分对 68.7 分)和社会关系(48.9 分对 76.5 分)方面明显较低。然而,研究参与者认为工作是个人发展的重要手段。因此,为了应对他们的困难,他们希望从针对他们的自闭症障碍的定制支持中受益,并希望他们的工作场所同事更好地了解阿斯伯格综合征。我们的结果与国际数据一致。需要进一步开展研究,以确定社会职业融合因素,特别是职业健康部门与支持这些年轻人的社会和医疗团队之间的潜在贡献的融合。康复意义阿斯伯格综合征的年轻人受益于家庭的支持,以确定他们的职业目标。可能需要支持来提高社交和沟通能力,以帮助他们融入社会。员工将受益于关于该综合征的信息以及如何最好地提供支持。