Soeselo Daniel Ardian, Suparman Alexandria Stephanie, Budi Agus Santoso
Dept. of Surgery, Atma Jaya School of Medicine and Health Science, Jakarta.
Dept. of Plastic Aesthetic & Reconstructive Surgery, Faculty of Medicine Airlangga University, Surabaya, Indonesia.
J Craniofac Surg. 2019 Jun;30(4):1105-1108. doi: 10.1097/SCS.0000000000005352.
Cleft lips (CL) and cleft palate (CP) are common congenital diseases caused by gene mutation in embriology development of the lips and mouth at 4 weeks of gestation. CL and CP can cause several problems such as difficulty in eating, speaking, abnormality in teeth and mouth development and ear iritation. Adequate treatment is needed to improve patients' quality of life.
This cross sectional study take samples purposively from all parents who joined in cleft charity surgery in Kencana Hospital, Serang, Banten on October 24th 2018. This study identify parents' knowledge, attitude and behaviour towards CL and CP and analyzed the relationship of parents' knowledge and attitude towards CL and CP. Statistical analysis used in this study is Fisher method.
Ten patients undergo labioplasty surgery, 1 patient undergo labioplasty revision, 5 patients undergo palatoplasty surgery and 10 patients undergo labioandpalatoplasty surgery. The majority of parents' education background have income < 3,5 million a month 84.6% (22 people), do not have any social insurance 88.5% (23 people) and joined in because of they cannot pay for medical treatment 96,2% (25 people). 6.2% (25 people) have under knowledge, 69.2% (18 people) have good attitude and 84.6% (22 people) have good behaviour toward CL and CP. There is no significant relationship between parents' knowledge and attitude toward CL and CP P value = 1,00 (P > 0,05).
Parent's under knowledge is caused by their low educational background and inaccurate information and education provided by medical professional. But, they had a good attitude and behaviour toward CL and CP because they had initiative to look for medical help and treat their children same as other normal one. Although they received inaccurate information and education about cleft disease, all parents looked for medical help and did what they were told by medical professionals.
The majority of parents in this study have under knowledge about cleft lips and cleft palate but they are still looking for medical help to treat their children. This charity significantly helps parents whose children have cleft lips, with or without cleft palate, to get treated in that area.
唇裂(CL)和腭裂(CP)是常见的先天性疾病,由妊娠4周时嘴唇和口腔胚胎发育过程中的基因突变引起。唇裂和腭裂会导致多种问题,如进食困难、说话困难、牙齿和口腔发育异常以及耳部不适。需要进行适当治疗以提高患者的生活质量。
本横断面研究于2018年10月24日在万丹省西冷市肯纳卡纳医院,从所有参加唇腭裂慈善手术的父母中进行有目的抽样。本研究确定了父母对唇裂和腭裂的知识、态度和行为,并分析了父母对唇裂和腭裂的知识与态度之间的关系。本研究使用的统计分析方法是费舍尔法。
10例患者接受唇成形术,1例患者接受唇成形术修复,5例患者接受腭裂修复术,10例患者接受唇腭裂修复术。大多数父母的教育背景是月收入<350万印尼盾(84.6%,22人),没有任何社会保险(88.5%,23人),因无力支付医疗费用而参加(96.2%,25人)。6.2%(25人)知识不足,69.2%(18人)态度良好,84.6%(22人)对唇裂和腭裂行为良好。父母对唇裂和腭裂的知识与态度之间无显著关系,P值=1.00(P>0.05)。
父母知识不足是由于他们的教育背景较低以及医疗专业人员提供的信息和教育不准确。但是,他们对唇裂和腭裂态度良好且行为积极,因为他们主动寻求医疗帮助并像对待其他正常孩子一样对待自己的孩子。尽管他们收到了关于唇腭裂疾病的不准确信息和教育,但所有父母都寻求了医疗帮助并听从了医疗专业人员的建议。
本研究中的大多数父母对唇裂和腭裂知识不足,但他们仍在寻求医疗帮助来治疗自己的孩子。这项慈善活动极大地帮助了那些孩子患有唇裂(无论是否伴有腭裂)的父母在该地区获得治疗。