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韩国预立医疗指示模式及其在血液系统疾病患者中完成情况的相关因素。

The Korean-Advance Directive Model and Factors Associated With Its Completion Among Patients With Hematologic Disorders.

作者信息

Lee Mee Ok, Park Jinny, Park Eun Young, Kim Youngji, Bang Eunjoo, Heo Seongkum, Kim JinShil

机构信息

Mee Ok Lee, MSN, RN, is nurse manager, Gachon University Gil Medical Center, Incheon, South Korea. Jinny Park, PhD, MD, is professor, Gachon University College of Medicine, and Department of Internal Medicine, Gil Medical Center, Incheon, South Korea. Eun Young Park, PhD, RN, KONP, is associate professor, College of Nursing, Gachon University, Incheon, South Korea. Youngji Kim, PhD, RN, is assistant professor, College of Nursing and Health, Kongju National University, Chungcheongnam-do, South Korea. Eunjoo Bang, PhD, RN, is assistant professor, College of Nursing, Gachon University, Incheon, South Korea. Seongkum Heo, PhD, RN, is associate professor, College of Nursing, University of Arkansas for Medical Sciences, Little Rock. JinShil Kim, PhD, RN, is professor, College of Nursing, Gachon University, Incheon, South Korea.

出版信息

J Hosp Palliat Nurs. 2019 Aug;21(4):E10-E16. doi: 10.1097/NJH.0000000000000522.

Abstract

The objective of this pilot study was to examine factors associated with the completion of advance directives (ADs) among patients with hematologic disorders in Korea. Using a descriptive design, patients with largely hematologic malignancies completed the questionnaires, including the Korean-Advance Directive (K-AD) model, which pertains to values, treatment wishes, and proxy appointment. Of 45 patients (aged 48.7 ± 10.7 years, 51.1% men), two-thirds had leukemia (40.0%) and lymphoma (26.7%). "Dying comfortably" was the most frequently selected value (n = 20). Regarding treatment wishes, hospice care was the most desired type (n = 22), whereas aggressive treatments, such as cardiopulmonary resuscitation, were less preferred (n = 3). The patient's spouse was most frequently appointed as a proxy (n = 27). Patients who completed all the 3 components of the K-AD model (51.1%) were less depressed (t = -2.31; P = .028) and more likely to perceive the benefits of the K-AD model (t = 2.07; P = .045), compared with the noncompleters (48.9%). Further, being male (odds ratio [OR], 6.42; P = .031), having higher scores on depressive symptoms (OR, 1.28; P = .016), and perceived barriers (OR, 1.08; P = .040) were associated with lower tendency to complete the K-AD model. These findings support the need for earlier introduction of ADs in hematologic disorders, with consideration of modifiable factors such as depression or barriers to end-of-life care decisions.

摘要

这项初步研究的目的是调查韩国血液系统疾病患者中与完成预立医疗指示(ADs)相关的因素。采用描述性设计,主要患有血液系统恶性肿瘤的患者填写了问卷,包括韩国预立医疗指示(K-AD)模型,该模型涉及价值观、治疗意愿和指定代理人。在45名患者(年龄48.7±10.7岁,男性占51.1%)中,三分之二患有白血病(40.0%)和淋巴瘤(26.7%)。“舒适地离世”是最常被选择的价值观(n = 20)。关于治疗意愿,临终关怀是最期望的类型(n = 22),而诸如心肺复苏等积极治疗则不太受欢迎(n = 3)。患者的配偶最常被指定为代理人(n = 27)。与未完成K-AD模型的患者(48.9%)相比,完成K-AD模型所有三个部分的患者(51.1%)抑郁程度较低(t = -2.31;P = .028),并且更有可能认识到K-AD模型的益处(t = 2.07;P = .045)。此外,男性(优势比[OR],6.42;P = .031)、抑郁症状得分较高(OR,1.28;P = .016)以及感知到的障碍(OR,1.08;P = .040)与完成K-AD模型的倾向较低相关。这些发现支持了在血液系统疾病中更早引入预立医疗指示的必要性,同时要考虑到诸如抑郁或临终护理决策障碍等可改变的因素。

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