Miccinesi Guido, Caraceni Augusto, Garetto Ferdinando, Zaninetta Giovanni, Bertè Raffaella, Broglia Chiara M, Farci Bruno, Aprile P Lora, Luzzani Massimo, Marzi Annamaria M, Mercadante Sebastiano, Montanari Luigi, Moroni Matteo, Piazza Elena, Pittureri Cristina, Tassinari Davide, Trentin Leonardo, Turriziani Adriana, Zagonel Vittorina, Maltoni Marco
Clinical Epidemiology Unit, Istituto per lo Studio, la Prevenzione e la Rete Oncologica, Firenze, Italy.
Palliative Care, Pain Therapy and Rehabilitation Unit, National Tumor Institute (INT) IRCCS Foundation, Milano, Italy.
J Palliat Care. 2020 Jan;35(1):3-7. doi: 10.1177/0825859719833659. Epub 2019 Mar 14.
This paper is aimed at focusing on the writings and the experience of the Hospice movement Founder, Dame Cicely Saunders. The in-depth analysis carried out had the objective of verifying if "the way" of Cicely to understand, live and propose palliative care was still current and "beautiful", so that we can nowadays refer to her fascinating "Original Palliative Care". With "beauty" we mean, on the one hand, a way able to allow a personal path of research of the meaning of the disease and of the care, both for those who care and for those who are cared for. On the other hand, it seems to us that Cicely strongly suggests how this path can not be carried out alone, but is only possible within the context of a network of relationships and support, in a so called "relational autonomy", for the patient, included in a "care ethics". The authors believe that the work extensively documents as the overall approach of Cicely, traditional but always to be rediscovered, is still today the most convincing way of conception and action of palliative care.
本文旨在聚焦临终关怀运动创始人西塞莉·桑德斯女爵士的著作及经历。所进行的深入分析旨在验证西塞莉理解、践行和倡导姑息治疗的“方式”在当下是否仍然适用且“美好”,以便我们如今能够借鉴她那引人入胜的“原初姑息治疗”。我们所说的“美好”,一方面是指一种能够让护理者和被护理者都进行关于疾病及护理意义的个人探索之路的方式。另一方面,在我们看来,西塞莉强烈表明这条道路无法独自践行,而只有在关系与支持网络的背景下才有可能实现,即所谓患者的“关系自主性”,且这包含在“护理伦理”之中。作者们认为,这项工作广泛记录了西塞莉的整体方法,虽传统但始终有待重新发现,在当今仍然是最具说服力的姑息治疗理念与行动方式。