de Noriega Íñigo, Barceló Marta, Pérez María Ángeles, Puertas Verónica, García-Salido Alberto, Martino Ricardo
Unidad de Cuidados Paliativos Pediátricos, Servicio de Pediatría, Hospital Infantil Universitario del Niño Jesús, Madrid, España.
Unidad de Cuidados Paliativos Pediátricos, Servicio de Pediatría, Hospital Infantil Universitario del Niño Jesús, Madrid, España.
An Pediatr (Engl Ed). 2020 Feb;92(2):94-101. doi: 10.1016/j.anpedi.2019.02.001. Epub 2019 Mar 16.
Patients may be admitted to hospital by paediatric palliative care units (PPCU) for different reasons, due to their different needs and clinical problems. The objective of this study is to present the data of patients admitted to the PPCU of the Autonomous Community of Madrid.
Descriptive retrospective study was conducted by reviewing the clinical records of the PPCU between January 2011 and December 2016.
Of 499 patients attended in this period, 166 (33%) were admitted to hospital at some point, generating a total of 314 episodes. Respiratory problems (34%) were the main cause of admission. Gastrostomy intervention (23 patients) was the commonest reason for a surgical admission. In this period, 46 patients died during hospitalisation. The highest frequencies of death, according to the admission cause, were respiratory problems (18 out 46) and end-of-life care (11 out 46). More than half (59%) of admissions lasted less than 7 days and 88% were 15 days or less.
The causes and characteristics of the hospital admissions at a PPCU are heterogeneous, with respiratory problems being the most common cause of admission. The duration of the hospitalisation appears to be similar to that described for acute palliative care units. The creation of a specific PPCU that can refer their patients for hospital admission might help to improve continuity of care.
由于需求和临床问题不同,儿童姑息治疗病房(PPCU)的患者可能因不同原因入院。本研究的目的是呈现马德里自治区PPCU收治患者的数据。
通过回顾2011年1月至2016年12月期间PPCU的临床记录进行描述性回顾性研究。
在此期间诊治的499例患者中,166例(33%)在某个时间点入院,共产生314次入院情况。呼吸问题(34%)是入院的主要原因。胃造口术干预(23例患者)是手术入院最常见的原因。在此期间,46例患者在住院期间死亡。根据入院原因,死亡频率最高的是呼吸问题(46例中有18例)和临终关怀(46例中有11例)。超过一半(59%)的入院持续时间少于7天,88%的入院持续时间为15天或更短。
PPCU患者入院的原因和特征各不相同,呼吸问题是最常见的入院原因。住院时间似乎与急性姑息治疗病房描述的相似。设立一个能够将患者转诊入院的特定PPCU可能有助于改善护理的连续性。