Department of Medical Humanities, Amsterdam University Medical Centers, Medical Humanities, Amsterdam, The Netherlands.
Bioethics. 2019 May;33(4):431-438. doi: 10.1111/bioe.12579. Epub 2019 Apr 23.
Working as clinical ethicists in an academic hospital, we find that practitioners tend to take a principle-based approach to moral dilemmas when it comes to (not) treating patients who feel like a burden, in which respect for autonomy tends to trump other principles. We argue that this approach insufficiently deals with the moral doubts of professionals with regard to feeling that you are a burden as a motive to decline or withdraw from treatment. Neither does it take into adequately account the specific needs of the patient that might underlie their feeling of being a burden to others. We propose a care ethics approach as an alternative. It focuses on being attentive and responsive to the caring needs of those involved in the care process-which can be much more specific than either receiving or withdrawing from treatment. This approach considers these needs in the context of the patient's identity, biography and relationships, and regards autonomy as relational rather than as individual. We illustrate the difference between these two approaches by means of the case of Mrs K. Furthermore, we show that a care ethics approach is in line with interventions that are found to alleviate feeling a burden and maintain that facilitating moral case deliberation among practitioners can supports them in taking a care ethics approach to moral dilemmas in (not) treating patients who feel like a burden.
作为一家学术医院的临床伦理学家,我们发现,当涉及到(不)治疗那些觉得自己是负担的患者时,从业者往往倾向于采取基于原则的方法来处理道德困境,在这种情况下,尊重自主权往往比其他原则更为重要。我们认为,这种方法不能充分解决专业人员对自己作为负担的道德疑虑,作为拒绝或停止治疗的动机。它也没有充分考虑到可能是患者感到自己是他人负担的具体需求。我们提出关怀伦理方法作为替代方法。它侧重于关注和回应护理过程中涉及到的关怀需求——这些需求可能比接受或停止治疗更为具体。这种方法将这些需求置于患者的身份、传记和关系的背景下,并将自主权视为关系性的,而不是个体性的。我们通过 K 女士的案例来说明这两种方法之间的差异。此外,我们还表明,关怀伦理方法符合减轻负担的干预措施,并认为促进从业者之间的道德案例讨论可以支持他们采取关怀伦理方法来处理(不)治疗那些觉得自己是负担的患者的道德困境。