School of Primary, Community and Social Care, Keele University, Keele, UK.
Midlands Partnership Foundation Trust, Stafford, UK.
Sociol Health Illn. 2020 Feb;42(2):342-358. doi: 10.1111/1467-9566.13005. Epub 2019 Sep 27.
Stoma surgery can be a life-changing procedure due to bodily changes and related psychological responses. Despite previous literature identifying unique challenges for young adults living with a long-term condition, no studies have explored the biographical implications of stoma formation. Drawing on interviews with 13 young adults, aged 18-29 years, with a stoma resulting from inflammatory bowel disease, this article aims to generate new theoretical insights in understanding the process of biographical (re)construction and the wider implications of stoma formation among this group. Data analysis combined constructivist grounded theory and narrative analysis. Whilst two narratives display 'biographical suspension' characterised by a distancing of self from their stoma, the majority of narratives highlight positive transformations in the young adults' conceptions of self; which we explain through the concept of 'biographical renewal'. The liberating effects of stoma surgery allowed young adults to reclaim aspects of their pre-illness selves, yet also reconfigure a new, altered sense of self, culminating in a 'new normal'. However, psychological distress also co-existed alongside these positive representations, revealing a tension that young adults attempt to reconcile through narrativising their experiences. Our findings have implications for the identification and management of the psychological needs of young people with a stoma.
造口手术可能会改变一个人的生活,因为身体的变化和相关的心理反应。尽管之前的文献已经确定了患有长期疾病的年轻人所面临的独特挑战,但没有研究探讨造口形成对传记的影响。本文通过对 13 名年龄在 18 至 29 岁之间的因炎症性肠病而造口的年轻人进行访谈,旨在从理论上深入了解传记(重新)构建的过程以及这一群体中造口形成的更广泛影响。数据分析结合了建构主义扎根理论和叙事分析。虽然有两个叙事表现出“传记暂停”,即自我与造口的距离疏远,但大多数叙事都强调了年轻人对自我概念的积极转变;我们通过“传记更新”的概念来解释这一点。造口手术的解放作用使年轻人重新获得了他们患病前自我的某些方面,但也重新构建了一种新的、改变了的自我感,最终达到了“新常态”。然而,心理困扰也与这些积极的表现并存,揭示了年轻人通过叙事化他们的经历试图调和的一种紧张关系。我们的研究结果对识别和管理造口年轻人的心理需求具有重要意义。