Jones Aimee, Woods Mary, Malhotra Katharine
Lymphoedema Specialist Nurse, Dorothy House Hospice Care, Winsley, Bradford-upon-Avon.
Nurse Consultant Lymphoedema, the Royal Marsden NHS Foundation Trust, London.
Br J Community Nurs. 2019 Oct 1;24(Sup10):S6-S10. doi: 10.12968/bjcn.2019.24.Sup10.S6.
Lymphoedema is a long-term chronic condition that results from lymphatic insufficiency and may cause skin changes, which can cause discomfort and impact patient' quality of life. The four cornerstones of lymphoedema management are exercise, lymphatic massage, compression and skin care. This article critically examines self-management in lymphoedema focusing on skin care. Patients may initially demonstrate enthusiasm to undertake the required skin care independently. However, psychosocial factors, such as financial burden and physical restraints, can affect motivation and behaviours over time. A patient's knowledge of the importance of skin care self-management should not be limited to the initial assessment, but should be continually assessed throughout their lymphoedema journey. The ongoing provision of patient-centred care may have psychological and behavioural benefits and help optimise skin care self-management.
淋巴水肿是一种由淋巴功能不全导致的长期慢性病症,可能会引起皮肤变化,进而造成不适并影响患者的生活质量。淋巴水肿管理的四大基石是运动、淋巴按摩、加压和皮肤护理。本文批判性地审视了淋巴水肿的自我管理,重点关注皮肤护理。患者最初可能会表现出独立进行所需皮肤护理的热情。然而,随着时间的推移,心理社会因素,如经济负担和身体限制,会影响其积极性和行为。患者对皮肤护理自我管理重要性的认知不应局限于初始评估,而应在其整个淋巴水肿病程中持续评估。持续提供以患者为中心的护理可能会带来心理和行为方面的益处,并有助于优化皮肤护理自我管理。