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血友病青少年的复原力观点:一项基于疾病复原力模型的定性研究。

Haemophiliac adolescents' perspectives of resilience: A qualitative study based on the resilience in illness model.

作者信息

Parviniannasab Ali Mohammad, Rakhshan Mahnaz, Momennasab Marzieh, Soltanian Mitra, Rambod Masoume, Akbarzadeh Mahdi

机构信息

PhD candidate in Nursing, Student Research Committee, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran.

Community-based Psychiatric Care Research Center, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran.

出版信息

Clin Child Psychol Psychiatry. 2020 Apr;25(2):346-358. doi: 10.1177/1359104519890905. Epub 2019 Dec 8.

Abstract

A qualitative study was conducted to investigate the concept of resilience among Iranian haemophilic adolescents based on the Haase's Resilience in Illness Model (RIM). Purposive sampling was used to recruit 15 participants comprising haemophilic adolescents and their parents in the study. The data were collected through in-depth semi-structured interviews and analysed using direct content analysis. The themes and categories were defensive coping (emotive coping, evasive coping), courageous coping (optimism, constructive approach, seeking support), derived meaning (spiritual strategy, hope) and social support (support from family, friends and treatment teams). Social support, adopting a spiritual strategy and self-management behaviours played an important role among the adolescents in improving their level of resilience and skills to cope with haemophilia.

摘要

基于哈泽疾病复原力模型(RIM),开展了一项定性研究,以调查伊朗血友病青少年的复原力概念。本研究采用目的抽样法招募了15名参与者,包括血友病青少年及其父母。通过深入的半结构化访谈收集数据,并使用直接内容分析法进行分析。主题和类别包括防御性应对(情绪应对、回避应对)、勇敢应对(乐观、建设性方法、寻求支持)、衍生意义(精神策略、希望)和社会支持(来自家庭、朋友和治疗团队的支持)。社会支持、采用精神策略和自我管理行为在青少年提高复原力水平和应对血友病的技能方面发挥了重要作用。

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