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理解用户参与衰老与健康研究的情况。

Understanding User Involvement in Research in Aging and Health.

作者信息

Iwarsson Susanne, Edberg Anna-Karin, Ivanoff Synneve Dahlin, Hanson Elizabeth, Jönson Håkan, Schmidt Steven

机构信息

Lund University, Sweden.

Kristianstad University, Sweden.

出版信息

Gerontol Geriatr Med. 2019 Dec 29;5:2333721419897781. doi: 10.1177/2333721419897781. eCollection 2019 Jan-Dec.

Abstract

User involvement in research is advocated as an avenue for efficient societal developments. In this article, we identify potentials, problems, and challenges related to research on aging and health, and identify and illustrate research priorities using an evolving research program as an example. Involving user representatives in the development phase, the UserAge program engages researchers at four universities in Sweden. The program builds upon previous and ongoing research with user involvement. The goals are to maximize the impact of user involvement, enhance the execution of high-quality research, increase the knowledge about what difference user involvement can make, and evaluate the impact of research about and with user involvement. Taken together and communicated in the international scientific community as well as in a wide range of public arenas, the empirical results, capacity-building, and modeling efforts of UserAge will have an impact not only on the present situation but also on the future.

摘要

倡导让用户参与研究,将其作为推动社会高效发展的途径。在本文中,我们确定了与衰老和健康研究相关的潜力、问题及挑战,并以一个不断发展的研究项目为例,确定并阐述了研究重点。“用户与年龄”(UserAge)项目在开发阶段让用户代表参与其中,瑞典四所大学的研究人员也参与其中。该项目基于此前及正在进行的用户参与研究。其目标是最大限度地发挥用户参与的影响,加强高质量研究的实施,增加对用户参与所能产生的影响的了解,并评估关于用户参与及有用户参与的研究的影响。“用户与年龄”项目的实证结果、能力建设及建模工作汇总起来并在国际科学界以及广泛的公共领域进行交流,不仅会对当前状况产生影响,也会对未来产生影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2a05/6937534/bc5765705a89/10.1177_2333721419897781-fig1.jpg

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