Peltz-Rauchman Cathryn D, Divine George, McLaren Daniel, Rubinfeld Ilan S, Conway William A, Allard David, Johnson Christine Cole
Department of Public Health Sciences, Henry Ford Health System, Michigan, USA.
Department of Acute Care Surgery, Henry Ford Health System, Michigan, USA.
JAMIA Open. 2019 Nov 11;2(4):429-433. doi: 10.1093/jamiaopen/ooz061. eCollection 2019 Dec.
Health care systems are increasingly utilizing electronic medical record-associated patient portals to facilitate communication with patients and between providers and their patients. These patient portals are growing in recognition as potentially valuable research tools. While there is much information about the response rates and demographics of internet-based surveys as well as the demographics of patients who are portal members, not much is known about the response rate of internet-based surveys directed to a group of patient portal members or the demographics of which portal members respond to internet-based surveys issued within that specific population. The objective of these analyses was to determine the demographics of patient portal users who respond to an internet-based survey request. We hypothesized that respondents would more likely be: (1) older (65+), (2) European American, (3) married, (4) female, (5) college educated, (6) have higher medical care utilization, (7) have more comorbidities, and (8) have a private practice primary care physician (as opposed to a salaried group practice primary care physician). We found that our respondents tended to be older, of European geographic ancestry, and more frequent users of healthcare. While patient portal members are an easily identifiable and contactable group that are potentially valuable participants for research, it is important to understand that respondents to surveys solicited from this sampling frame may not be entirely representative. It will be important to develop strategies to more fully engage populations that represent the target population in order to increase overall and subgroup response rates.
医疗保健系统越来越多地利用与电子病历相关的患者门户网站,以促进与患者以及医疗服务提供者与患者之间的沟通。这些患者门户网站作为潜在的有价值的研究工具,正日益受到认可。虽然有很多关于基于互联网的调查的回复率和人口统计学信息,以及门户网站成员的人口统计学信息,但对于针对一组患者门户网站成员的基于互联网的调查的回复率,或者在该特定人群中回复基于互联网的调查的门户网站成员的人口统计学信息,人们了解得并不多。这些分析的目的是确定回复基于互联网的调查请求的患者门户网站用户的人口统计学特征。我们假设回复者更可能是:(1)年龄较大(65岁及以上),(2)欧裔美国人,(3)已婚,(4)女性,(5)受过大学教育,(6)医疗保健利用率较高,(7)有更多的合并症,以及(8)有私人执业的初级保健医生(而不是受薪团体执业的初级保健医生)。我们发现,我们的回复者往往年龄较大,具有欧洲地理血统,并且是医疗保健的更频繁使用者。虽然患者门户网站成员是一个易于识别和联系的群体,是潜在的有价值的研究参与者,但重要的是要明白,从这个抽样框架中征集的调查的回复者可能并不完全具有代表性。制定策略以更充分地吸引代表目标人群的群体参与,以提高总体和亚组的回复率将很重要。