Keilty Bonnie, Smith JaneDiane
Bonnie Keilty, Hunter College, City University of New York; and JaneDiane Smith, University of North Carolina, Charlotte.
Intellect Dev Disabil. 2020 Feb;58(1):1-18. doi: 10.1352/1934-9556-58.1.1.
Increasingly, families know prenatally of certain diagnoses with a high probability of developmental delays. These diagnoses could result in eligibility for Part C early intervention (EI) postnatally. Although prenatal developmental interventions (e.g., Early Head Start, Nurse Family Partnership) are common for families with environmental risks, no research has explored the potential of prenatal EI for those families with EI eligible diagnoses. This online survey research explored family and practitioner perspectives of potential prenatal EI and project-identified prenatal outcomes (i.e., health and well-being, parent-child interactions, parenting to family culture, and navigating systems and supports). Overall, both samples reported the prenatal outcomes were clear and important prenatally. Families preferred EI practitioners help with all outcomes. Practitioners preferred to take the lead on some outcomes (e.g., knowledge of and comfort with EI services, intention of EI), whereas the medical community took the lead on others. Findings support the need for further research on the potential of prenatal EI and resulted in implications for current postnatal EI.
越来越多的家庭在产前就知晓某些很可能导致发育迟缓的诊断结果。这些诊断结果可能使孩子在出生后符合接受C部分早期干预(EI)的条件。虽然针对有环境风险的家庭,产前发育干预措施(如早期开端计划、护士-家庭伙伴关系项目)很常见,但尚无研究探讨产前EI对那些有资格接受EI诊断的家庭的潜力。这项在线调查研究探讨了家庭和从业者对潜在产前EI以及项目确定的产前结果(即健康与幸福、亲子互动、融入家庭文化的养育方式以及应对系统和支持)的看法。总体而言,两个样本都报告称产前结果在产前是明确且重要的。家庭希望EI从业者在所有结果方面提供帮助。从业者更倾向于在某些结果方面发挥主导作用(如对EI服务的了解和熟悉程度、接受EI的意愿),而医疗界则在其他方面发挥主导作用。研究结果支持有必要进一步研究产前EI的潜力,并对当前的产后EI产生了影响。