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脑瘫患儿家长对职业治疗依从性的影响因素探究:一项定性研究

Exploration of the Influential Factors on Adherence to Occupational Therapy in Parents of Children with Cerebral Palsy: A Qualitative Study.

作者信息

Rezaie Leeba, Kendi Sadiqa

机构信息

Sleep Disorders Research Center, Kermanshah University of Medical Sciences, Kermanshah, Iran.

Division of Emergency Medicine, Children's National Health System, Washington DC, PA 20010, USA.

出版信息

Patient Prefer Adherence. 2020 Jan 13;14:63-72. doi: 10.2147/PPA.S229535. eCollection 2020.

Abstract

BACKGROUND

Cerebral palsy (CP) is the leading cause of permanent disability in children. Occupational therapists serve a primary role in the rehabilitation of children with CP. Poor adherence to treatment is common. The aim of this study is to explore the viewpoint of occupational therapists on factors which impact adherence to occupational therapy (OT) interventions among parents of children with CP.

MATERIAL AND METHODS

A qualitative approach using semi-structured interviews were employed. Our participants were recruited by purposive sampling among occupational therapists who were working in Kermanshah province, western Iran. The interviews were taped and transcribed. Content analysis using constant comparison was performed.

RESULTS

The mean age of our participants was 34.23±7.50. Four main categories with specific subcategories emerged as important in affecting adherence. The first category of child and family-related factors described factors such as the clinical status of the child and family composition. These factors had the potential for both improving and reducing adherence to treatment. The second category of therapist-related factors described the effect of appropriate professional skills of the therapist on improving adherence and included clinical competency, communication skills, and job satisfaction. The third category of environmental factors addressed factors such as cultural views of child disability and access to OT interventions. The category mostly emphasized environmental barriers to adherence to treatment. The fourth category of therapy-related factors described barriers such as the type of therapy, and the length of treatment.

CONCLUSION

Adherence to OT interventions in parents of children with CP can be influenced by several factors. These factors range from child and family-related factors to therapy-related factors and have the potential for both positively and negatively affecting adherence. Programs to improve adherence should address these factors together.

摘要

背景

脑瘫(CP)是儿童永久性残疾的主要原因。职业治疗师在脑瘫儿童的康复中起着主要作用。治疗依从性差很常见。本研究的目的是探讨职业治疗师对影响脑瘫患儿家长对职业治疗(OT)干预依从性的因素的看法。

材料与方法

采用半结构化访谈的定性方法。我们的参与者是通过目的抽样从伊朗西部克尔曼沙阿省工作的职业治疗师中招募的。访谈进行录音并转录。采用持续比较法进行内容分析。

结果

我们参与者的平均年龄为34.23±7.50。出现了四个主要类别及特定子类别,它们在影响依从性方面很重要。第一类儿童和家庭相关因素描述了诸如儿童的临床状况和家庭构成等因素。这些因素有可能提高或降低治疗依从性。第二类治疗师相关因素描述了治疗师适当的专业技能对提高依从性的影响,包括临床能力、沟通技巧和工作满意度。第三类环境因素涉及诸如对儿童残疾的文化观念和获得职业治疗干预的机会等因素。该类别主要强调治疗依从性的环境障碍。第四类治疗相关因素描述了诸如治疗类型和治疗时长等障碍。

结论

脑瘫患儿家长对职业治疗干预的依从性可能受到多种因素的影响。这些因素从儿童和家庭相关因素到治疗相关因素不等,有可能对依从性产生积极和消极的影响。提高依从性的项目应综合考虑这些因素。

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