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青少年和青年癌症患者教育和职业服务评估:回顾性研究。

Evaluation of an Educational and Vocational Service for Adolescent and Young Adults with Cancer: A Retrospective Review.

机构信息

ONTrac at Peter Mac Victorian Adolescent & Young Adult Cancer Service, Peter MacCallum Cancer Centre, Melbourne, Australia.

Department of Social Work and The University of Melbourne, Melbourne, Australia.

出版信息

J Adolesc Young Adult Oncol. 2021 Feb;10(1):56-65. doi: 10.1089/jayao.2020.0009. Epub 2020 May 11.

Abstract

A cancer diagnosis and its treatment has the potential to interfere with the ability of adolescent and young adults (AYAs) to remain engaged in education or employment, placing social connectivity, career progression, and financial security at risk. This study aimed at assessing the educational and vocational outcomes of AYAs supported by an Education and Vocational Support Program (EVSP). Consecutive case files were reviewed of AYAs accessing the EVSP at ONTrac at Peter Mac (January 2014-December 2016). Data collected included: demographic information; diagnosis and treatment; referral time point; education/employment status at referral and end of treatment; and interventions provided. Two hundred nineteen AYAs had >1 appointment with an EVSP advisor. The mean age was 19.6 (13-26). The most common intervention delivered was direct consultations. Overall, 79% of AYAs were engaged in educational and/or vocational pursuits at last known status. Engagement with EVSP during treatment for employment and tertiary educational support had a high rate of attendance at last known status (during treatment: 93% and 92.5%; post-treatment: 71% and 69%, respectively). At referral to EVSP, 27 AYAs were not in education, employment, or training; however, >50% re-integrated in employment or study after EVSP support. This is the first study to describe the role of an EVSP for Australian AYAs. With the support of an EVSP, the vast majority of AYAs remained engaged in education and/or employment throughout their cancer trajectory. Further research will be required to evaluate the quality of interventions and incorporate the voice of AYAs to further inform service delivery.

摘要

癌症的诊断和治疗有可能干扰青少年和年轻成年人(AYAs)继续接受教育或就业的能力,从而使社交联系、职业发展和财务安全面临风险。本研究旨在评估由教育和职业支持计划(EVSP)支持的 AYAs 的教育和职业结果。

对在 ONTrac 彼得·马克(Peter Mac)接受 EVSP 服务的 AYAs 的连续案例档案进行了回顾(2014 年 1 月至 2016 年 12 月)。收集的数据包括:人口统计学信息;诊断和治疗;转诊时间点;转诊和治疗结束时的教育/就业状况;以及提供的干预措施。

有 219 名 AYA 与 EVSP 顾问进行了>1 次预约。平均年龄为 19.6 岁(13-26 岁)。提供的最常见干预措施是直接咨询。总体而言,在最后一次已知状态下,79%的 AYA 从事教育和/或职业活动。在治疗期间接受 EVSP 的就业和高等教育支持,在最后一次已知状态下的出席率很高(治疗期间:93%和 92.5%;治疗后:71%和 69%)。在转诊至 EVSP 时,有 27 名 AYA 没有接受教育、就业或培训;然而,在接受 EVSP 支持后,超过 50%的人重新融入了就业或学习。

这是第一项描述澳大利亚 AYA 中 EVSP 作用的研究。在 EVSP 的支持下,绝大多数 AYA 在癌症治疗过程中仍保持教育和/或就业。需要进一步研究来评估干预措施的质量,并纳入 AYA 的意见,以进一步为服务提供提供信息。

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