School of Nursing and Cancer and Palliative Care Outcomes Centre, Queensland University of Technology, Brisbane, Australia; Princess Alexandra Hospital, Metro South Hospital and Health Services, Brisbane, Australia.
School of Nursing and Cancer and Palliative Care Outcomes Centre, Queensland University of Technology, Brisbane, Australia.
Eur J Oncol Nurs. 2020 Oct;48:101795. doi: 10.1016/j.ejon.2020.101795. Epub 2020 Jul 28.
The family-caregiver role is of critical importance to the success of symptom-related self-management of patients with advanced cancer. This study examined the perspectives of patients and family-caregivers regarding the role of the family-caregiver in symptom-related self-management support ( SMS).
Semi-structured interviews were conducted in patients with advanced cancer experiencing significant symptom burden and their family-caregivers. An inductive content analysis approach was used to analyse data.
Eleven patients and ten family caregivers were included. Identified themes were 1) engaging in specific symptom-related SMS; 2) interacting with health care professionals; and 3) balancing patient need versus expectation. These themes were applicable to both the family-caregiver and patient cohorts, regardless of the individual symptom profile of each patient.
The role of family-caregivers of patients with advanced cancer is complex and varied in providing symptom-related SMS at home; often requiring family-caregivers to have diverse knowledge and skills in the management of a range of cancer-related symptoms. Health care professionals can support family-caregivers by anticipating needs, tailoring evidence-based information to those needs, and ensuring family-caregivers have an appropriate contact point for advice or help.
在晚期癌症患者症状相关自我管理的成功中，家庭护理者的角色至关重要。本研究探讨了患者和家庭护理者对家庭护理者在症状相关自我管理支持（SMS）中角色的看法。
对有明显症状负担的晚期癌症患者及其家庭护理者进行半结构化访谈。采用归纳内容分析方法分析数据。
共纳入 11 名患者和 10 名家庭护理者。确定的主题为 1）参与特定的症状相关 SMS；2）与医疗保健专业人员互动；3）平衡患者的需求与期望。这些主题适用于患者和家庭护理者两组，而与每位患者的个体症状特征无关。
晚期癌症患者的家庭护理者在家庭中提供症状相关 SMS 的角色是复杂和多样的；通常需要家庭护理者在管理一系列癌症相关症状方面具有不同的知识和技能。医疗保健专业人员可以通过预测需求、根据这些需求调整基于证据的信息以及确保家庭护理者有适当的咨询或帮助联系点来支持家庭护理者。
