Ex-Leeds Teaching Hospitals NHS Trust, England, UK.
BMC Nephrol. 2020 Aug 12;21(1):338. doi: 10.1186/s12882-020-01997-1.
The Renal Association UK Renal Registry (UKRR), established in 1995, has reflected the development of Nephrology within the NHS over 25 years. It has been gradually enlarged to provide a formal agency for a range of consensus initiatives. It remains the source of the national epidemiology of renal replacement, feeding NHS infrastructures and Health Services Research. An extension into acute and chronic kidney disorders is in hand. As a template for medical audit it has contributed to a quality improvement ethos derived from several methodologies. It now offers a multifaceted virtual platform for special interest groups and patient-centricity. Its transformation demonstrates one of the compromises that have permitted specialty development within the inconstant envelope of the NHS.If not always a bellwether, the clarity, form and scale of kidney disease provision still qualifies the UKRR as a demonstrator of healthcare possibilities to Medicine, Clinical Informatics and the NHS.
英国肾脏协会肾脏注册处(UKRR)成立于 1995 年,25 年来反映了英国国民保健制度(NHS)内肾脏病学的发展。它逐渐扩大,为一系列共识倡议提供了正式机构。它仍然是国家肾脏替代治疗流行病学的来源,为 NHS 基础设施和卫生服务研究提供信息。目前正在向急性和慢性肾脏疾病扩展。作为医疗审核的模板,它为源自多种方法的质量改进理念做出了贡献。现在,它为特殊利益群体和以患者为中心提供了一个多方面的虚拟平台。它的转型证明了一种妥协,这种妥协允许在英国国民保健制度(NHS)不断变化的范围内发展专业知识。如果说 UKRR 不是一个风向标,那么肾脏疾病提供的明确性、形式和规模仍然使它成为医学、临床信息学和 NHS 展示医疗保健可能性的典范。